Being the mother of a 26-year-old deafblind young adult, I thought of sharing as an opportunity to get to know parents and collaborate. I usually attend special needs conferences and sharing has always been a priority, but I now see that I was underestimated the power of sharing. When I attended the April 2018 Deafblind International Conference, I participated in a session about “being open to surprise” facilitated by Barbara Miles.
The presentation was about voice and power. Everyone came together: parents, professionals and deafblind adults to share all kind of experiences that touched their lives.
Something magical happened.
I saw so much love in everyone. Teachers and professionals shared to what extent the students had shaped their lives and how much they care for both students and parents. They shared the lessons learned through the years, things that I could have never imagined. Some participants who are deafblind also shared their experiences of how they perceived the world when they were younger. That brought so many tears and joy at the same time. I learned different ways in which we can get surprised by our own children when we have the patience of waiting for an unexpected response. There are so many things that parents will be willing to learn and try if they learn it first hand through sharing, because those experiences are real.
There are so many people who contribute to the success of our children; we will never be able to thank them enough. By understanding the magic of sharing, we come together to give back all the love, help and compassion that we have received throughout our journey. Please join a parent networking group and share as much as you can, you are not alone!