Boy wearing headphones, eating ice cream

Voices of the CVI community

Blogs, websites, and a podcast from CVI parents and individuals with CVI

The CVI community has a lot to say.

We are grateful for people with CVI and their families who take the time to share their stories with the world. The collective voice of CVI continues to grow. Our stories create awareness. And awareness creates change. 

Blogs and videos by adults with CVI

Voices of teenagers with CVI

Get social!

We love these social media accounts from disability advocates, artists, educators, CVI parents, therapists, and many more. You’ll find so much camaraderie and inspiration at:

Parent blogs about their own CVI journey

Parent-created resources about CVI

What’s your CVI story? We’d like to hear it. Join our private CVI Now Facebook Group for parents and families, and share. You can also use the contact us link to share your ideas. 

Henry’s love and passion for riding our public transportation trains and buses is going on three years strong now. So we’ve been able to get gifts connected to this love. A few favorites: MBTA train toy models and MBTA t-shirts and sweatshirts. For his recent birthday, a fellow CVI friend got him this train toy with music, lights, and movement, and he loves it. We also got some gifts outside this interest. The DRIVEN toy vehicle line has been great to go back to again and again. Fidgets and sensory toys are always a win because he can get into them immediately: keyboard fidgets and a cheap light-up spinner at Walgreens. We got him the Pop It! Pro last year, and while the light-up game goes a bit too fast for him, he really likes engaging with it. Honestly, the best gift is a train ride to get his favorite dairy-free ice cream.

Unwrap joy with 100+ gift ideas for kids with CVI

Zeke and Tina take a selfie

7 images that show what people with CVI may see

Isaac and his son Emmett pose for photo outdoors

Celebrating CVI dads: Isaac and Emmett