Boy wearing headphones, eating ice cream

Voices of the CVI community

Blogs, websites, and a podcast from CVI parents and individuals with CVI

The CVI community has a lot to say.

We are grateful for individuals with CVI and CVI parents who take the time to share their personal stories with the world. The collective voice of CVI continues to grow. Our stories create awareness. And awareness creates change. 

Blogs written by adults with CVI

Voices of teenagers with CVI

Parent blogs about their own CVI journey

Parent-created resources about CVI

What’s your CVI story? We’d like to hear it. Join our private CVI Now Facebook Group for parents and families, and share. You can also use the contact us link to share your ideas. 

A mom and daughter looking at each other smiling and holding hands

Balancing emotions with IEP advocacy


Tina’s CVI Perspective: “Your eyes see, but your brain doesn’t”

A close up of Albie smiling wearing a green shirt that reads: Team

Albie’s CVI Perspective: “I want people to be more open to CVI”