Boy wearing headphones, eating ice cream

Voices of the CVI community

Blogs, websites, and a podcast from CVI parents and individuals with CVI

The CVI community has a lot to say.

We are grateful for people with CVI and their families who take the time to share their stories with the world. The collective voice of CVI continues to grow. Our stories create awareness. And awareness creates change. 

Blogs by adults with CVI

Voices of teenagers with CVI

Get social!

We love these social media accounts from disability advocates, artists, educators, CVI parents, therapists, and many more. You’ll find so much camaraderie and inspiration at:

Parent blogs about their own CVI journey

Parent-created resources about CVI

What’s your CVI story? We’d like to hear it. Join our private CVI Now Facebook Group for parents and families, and share. You can also use the contact us link to share your ideas. 

Toddler boy smiles while holding out small cooking pot

Designing meaningful EI routines for your child with CVI

August wearing glassing sitting and smiling in front of a window.

How my son’s CVI diagnosis broke, then rebuilt my heart

Teacher works with toddler to help him explore a drum

Tips for effectively working with EI providers