It’s challenging for any parent to keep up with school-related activities and demands as students progress through high school and prepare to graduate. For parents of students with disabilities, managing the day-to-day responsibilities, along with transition-related tasks and activities, may seem insurmountable.
This transition timeline can help you stay on track with paperwork, decision making, and engagement with adult service agencies. If you’re looking for more support, our Transition IEP Guide includes additional timelines and resources related to the Individualized Education Plan (IEP) process. It may also be helpful to use our transition glossary to familiarize yourself with key terms.
Transition planning: (under 14)
Obtain Social Security card and have available a copy of the birth certificate and health insurance card
Connect with family organizations and register with state agencies for services:
Request information from school on required transition activities
Encourage student to attend IEPs, or a portion, as young as appropriate; allow student to make personal connections with transition coordinators and community supports
Discuss transition at the IEP meeting prior to the student turning 14 to gain an understanding of transition requirements; IEP team should discuss and develop an awareness for long range transition goals
Develop an awareness of available extracurricular activities in your community
Transition planning: (Ages 14-16)
Begin involving the student in the IEP process and all related transition activities.
Student and family develop understanding of what accommodations are needed to do well in school and at work
Consider options related to decision making such as supported decision making, guardianship, health care proxy, durable power of attorney, adult foster care, etc.
Explore Pre-ETS funding and related activities
Research and educate yourself about adult services and supports
Make decisions around graduation requirements (i.e., state testing, certificate of accomplishments, etc.)
Transition planning: (Ages 16-18)
Start the referral process for adult services. For Massachusetts residents, your school district should complete a Chapter 688 referral. This inquiry can be made during the IEP when the transition planning page is reviewed. Once an agency (or agencies) have been identified, obtain release and consent forms for adult service agencies’ involvement.
Research the age of majority in your state and make decisions about guardianship. Submit a copy of the decree of guardianship if applicable.
Apply for and create linkages to adult services
Apply for disability benefits (i.e., SSI and Medicaid) and speak with a benefits officer. This can be done earlier if the young adult is in a residential placement or if parent/guardian is considered low income.
Contact the Department of Developmental Disabilities (DDS) (if found eligible) or the equivalent department in your state to explore day programming and residential options. This should be completed no later than nine months prior to graduation, usually around the student’s 21st birthday.
In Massachusetts, the Chapter 688 liaison submits the ITP to the Transitional Advisory Committee (TAC) who will approve, modify, or reject the document. This decision can be appealed.
If found eligible for DDS/DDD services, explore day and residential programs,
Meet and tour adult service agencies and select appropriate service providers. Note that places usually cannot be held this early (listed “by age 18 on this page), but it may be worth identifying appropriate agencies.
Research different models, such as day habilitation, Personal Care Attendant (PCA), supported vocational, and community-based day support.
Research adult family foster care and PCA options
Apply for non-driver ID card, if appropriate
If your child is a male,, you must register him for the draft – failure to do so can affect eligibility for some government benefits.
Apply for Section 8 housing
Determine if a service coordinator has been assigned and is beginning to develop the individual’s adult services (3-5 months before graduation)
Stay in the conversation about post-secondary transition.
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