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The current state of CVI: A hidden epidemic

Download this whitepaper to get this first-of-its-kind CVI prevalence data focused on children and young adults with CVI in the U.S.

Download the PDF to explore first-of-its-kind CVI prevalence data focused on children and young adults with CVI in the U.S.

“The current state of CVI: A hidden epidemic” explores the epidemiology of CVI and the pressing need for greater awareness, accurate diagnosis, and improved access to quality care.

Key takeaways

  • For every diagnosed child with CVI, we found 4 more likely cases of CVI.
  • Over 180,000 kids with CVI in the US – and most of these kids are not being diagnosed.
  • This new data shows just how prevalent CVI is — and it’s just the tip of the iceberg! Our estimate of 180,000 children with CVI is a conservative one and may under-represent children who have healthy eyes, or who aren’t diagnosed with a co-occurring condition, who may still have CVI, as well as children lacking health insurance or those primarily receiving school-based care.
  • Among patients we identified with CVI, 65% have a CP diagnosis, 64% epilepsy, 72% developmental delay, and 20% genetic anomalies, which is consistent with published literature.

CVI: A hidden epidemic

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