The Perkins CVI Protocol: Q&A with the CVI team

Ellen Mazel, Marguerite Tibaudo, and Ilse Willems discuss the goals, components, and development process of the new Perkins CVI Protocol (in development).

CVI Now hosted a live virtual event about the new Perkins CVI Protocol, a digital assessment system and educational roadmap. Ellen Mazel, Marguerite Tibaudo, and Ilse Willems discussed the goals, development process, and components of the Perkins CVI Protocol, and answered a lot of great questions from CVI parents and individuals.

About the Perkins CVI Protocol

The CVI Center at Perkins is developing a new, comprehensive CVI assessment system that reflects the most cutting-edge research and a whole-child focused approach, providing the best possible data and support for all children with CVI. 

The Perkins CVI Protocol will be a digital assessment system and educational roadmap for the whole child. The CVI Protocol fills an important need in the field—it is a tool that supports every child, regardless of their manifestation of CVI, and teaches every professional, regardless of their prior knowledge of CVI.

This digital tool offers more than just a functional vision assessment—it will create a series of reports to help parents, TVIs, school systems, and medical professionals understand and meet the unique needs of each individual child with CVI. 

The Perkins CVI Protocol is in development. Stay tuned for information about the release of the various elements of this comprehensive assessment system.

Based on science and research

  • The Perkins CVI Protocol is supported by current research from a variety of experts in the field to support each component of the protocol.
  • Developed in collaboration with leading academic research scientists
  • In order to stay current and reflect the emerging CVI research and evolution of the field of CVI, The Perkins CVI Protocol will continue to reflect new and cutting-edge research at all levels of the process in the years to come. 

A whole-child approach

The Perkins CVI Protocol will

  • Comprehensively assess CVI visual behaviors and compensatory skills for optimal learning
  • Look at the whole child including their motor, cognitive, behavior and social-emotional skills that influence learning
  • Be inclusive of the diverse manifestations of CVI 
  • Evaluate ways the individual functions based on visual skills, compensatory and sensory efficiency skills (auditory, tactile, kinesthetic), and other cognitive based skills such as memory, prediction, shape coding and color coding to recognize the world around them
  • Create a series of reports that include an educational roadmap to help school teams develop approrpiate educational programming for their students with CVI

Embedded CVI learning 

The Perkins CVI Protocol will include embedded CVI learning at every step to ensure all professionals, even those without a deep knowledge of CVI, are able to access and use this CVI protocol to best inform the most appropriate and effective educational programming for children with CVI.