Written by: Nikoletta Livingston, OT, OTD, OTR, CCVI
Cerebral/cortical visual impairment (CVI) is a brain-based visual impairment caused by damage or interruption to the visual processing areas of the brain. With CVI, the brain has difficulty recognizing and making sense of the visual world. CVI impacts every aspect of life. The CVI visual behaviors are a framework for understanding the impact of CVI on access and is rooted in current CVI research.
CVI is the leading cause of childhood blindness and low vision, but it is alarmingly underdiagnosed. Less than 20% of kids in the US have a CVI diagnosis. CVI often co-occurs with neurological, neurodevelopmental, or genetic conditions. Those with healthy eyes and without other conditions can still have CVI.
CVI can significantly impact students across all domains in the occupational therapy (OT) scope of practice, from effectively evaluating visual function and perception on occupational performance to implementing specific strategies, skill development, and modifications. Given that assessment of visual perception and processing is such a significant part of occupational therapy evaluation, particularly in a school-based setting, it is critical that occupational therapy practitioners (OTPs) screen for and recognize when CVI may be present (see below). Specifically in students, this may include:
While numerous factors addressed by occupational therapy may also be present with CVI, it is important to note specific key indicators. These may include:
Learn more about when to suspect CVI.
Students with CVI are highly unique, and what works for one person may be extremely challenging for another person. Intervention, as always, should be driven by individual evaluation. Since the function of OT is to consider all the demands for access, and generalization across settings, it is critically important that OTPs evaluate any strategies used in various contexts, to determine how fatigue, lighting, sensory regulation, visual access, and other variables impact the individual’s ability to effectively implement the tool or strategy. Be prepared to adapt; what works in one context may not work in another.
Remember: this is not the time to work on habituation or desensitization to stimuli. Individuals with CVI CANNOT effectively learn when their visual system is being overpowered.
Collaboration is key to the success of occupational therapy intervention!
Note to readers: This article is meant as an overview and brief introduction to CVI, a deep and complex condition with diverse manifestions. It is important to remember that all children with CVI have different needs. The recommendations and suggestions are ideas for a starting point. There is not one size fits all approach for CVI, and interventions and strategies must be match to the student’s individualized needs and comprehensive assessment results.
Nikoletta Livingston, OT, OTD, OTR, CCVI
Nikoletta is a supervising practitioner at Perkins School for the Blind, in the Secondary program, supporting staff working with students ages 14-22 with visual impairments and multiple disabilities. Nikoletta completed her occupational therapy program at Boston University, where she focused her doctoral work on CVI, as well as completed the University of Massachusetts Boston CVI Certificate program. She hopes to contribute towards the development of collaborative practices and understanding between the clinical and educational worlds, working to effectively and comprehensively support individuals with CVI.