Two hands hold a red ceramic heart

1:1 CVI Parent Support

Whether you're new to CVI or more experienced but need answers, sign up for a one-on-one CVI parent support session. Lean in. We've got you.

Our CVI parent support program is an opportunity to speak with our CVI Now staff one-on-one. We are here to discuss your questions and concerns and provide support and information. We know how hard this is and all the challenges parents have to navigate raising their child with CVI. Lean in. We can focus on what’s heavy on your mind and heart, including what comes after a new diagnosis, wondering if your child has CVI, navigating the school system, transition, adaptions, and/or any other relevant CVI topic. 

Whether you are new to CVI, just received a diagnosis, or are more experienced but seeking answers, we are here to talk and provide you with resources.

This 30-minute 1:1 meeting will include: 

We’re here to offer guidance and support. The 1:1 will not be a place for a detailed review of the IEP, make IEP Goals and Objectives, attend an IEP, or collaborate with any of your child’s team members.

Sign up for a 1:1 today!

CVI Parent Support

By submitting this form, you agree to our Terms & Conditions and Privacy Policy.
This field is for validation purposes and should be left unchanged.

Meet Lacey Smith, CVI Parent Community Manager

Lacey has worked closely with children with visual impairments, multiple disabilities, rare diseases, and dual sensory loss, providing consultation and support to the students, families, and their teams. Lacey has a Bachelor’s in General Studies with a Concentration in Early Childhood Education from the University of Kansas, a Master’s in Education as a Teacher of Students with Visual Impairments (TVI) from UMass Boston, and a Graduate Certificate in Cortical/Cerebral Visual Impairment (CVI) also achieved at UMass Boston. Lacey’s interest was inspired by her 12-year-old daughter’s diagnosis of CVI, and she continually strives to learn more and support families with all she has learned along her own journey. 

A note from Lacey: “Feeling supported has helped me face the challenges of disability parenting head-on. To this day, I still lean in when I need support, even as I feel more equipped to advocate for my daughter at any level. I get it. I know what it’s like to navigate tough waters and challenging times. I’m here. While our journeys are different, I aim to provide support related to the CVI needs of your child.” 

Henry’s love and passion for riding our public transportation trains and buses is going on three years strong now. So we’ve been able to get gifts connected to this love. A few favorites: MBTA train toy models and MBTA t-shirts and sweatshirts. For his recent birthday, a fellow CVI friend got him this train toy with music, lights, and movement, and he loves it. We also got some gifts outside this interest. The DRIVEN toy vehicle line has been great to go back to again and again. Fidgets and sensory toys are always a win because he can get into them immediately: keyboard fidgets and a cheap light-up spinner at Walgreens. We got him the Pop It! Pro last year, and while the light-up game goes a bit too fast for him, he really likes engaging with it. Honestly, the best gift is a train ride to get his favorite dairy-free ice cream.

Unwrap joy with 100+ gift ideas for kids with CVI

Family with a mom, dad, and two boys painting on a lit up table

In Louisiana, CVI activism ignites policy change

Barry Kran conducts an exam in the eye clinic

How to find a doctor who is able to evaluate for and diagnose CVI