There are at least
180,000 kids
with CVI in
the U.S. (an

Up to 70%of kids with Cerebral Palsy have CVI. It’s also common in Autism, Down Syndrome, and neurodevelopmental conditions.

#1 causeCVI is the leading cause of childhood blindness. Based in the brain, it’s misunderstood and underdiagnosed.

Less than 20%of likely CVI cases may receive a diagnosis.

Kids with CVI Can’t Wait

CVI is a research priority for NEI/NIH

  • The National Institutes of Health (NIH) hosted a CVI workshop on November 17, 2023, to foster awareness, increase the CVI research pool, establish consensus on CVI and the diagnostic process, and build a CVI registry. You can watch a recording of the entire day’s presentations.
  • The fact that we have representation from the eye, the brain, and development just tells you that [NIH] understands just how complicated CVI is. There is a saying that if you give people a voice, eventually they will be heard. And that’s how change happens. Today is proof that that’s a true statement. This has been a long journey. We have a lot more to do,” -Dr. Lotfi Merabet, co-chair of the NIH CVI Workshop.
  • The condition [CVI] has historically been under-recognized.” –NEI Strategic Plan: Vision for the Future.

Explore our CVI
Research Library

Read current peer-reviewed research about CVI, the visual system, and the brain in our Research Library, which will continue to evolve as new research emerges.

Two students work together as they engage with an adapted book

CVI Screening and Diagnosis Resources

“A patient is neither uncooperative nor untestable. It is the responsibility of the provider to create an environment where the patient can be successful.”
—Dr. Barry Kran, OD, FAAO

Boy placing a puzzle piece into a puzzle board

Intersection of CVI and Ocular Clinical Assessment

Dr. Nicole Ross, OD, MSc, FAAO, presents CVI, co-occurring ocular conditions, and how she evaluates and diagnoses CVI.

No CVI patient is untestable

Dr. Barry Kran, OD, FAAO, shares how he evaluates children suspected of having CVI and his approach to working with patients, no matter their complexities.

CVI Screening Tools

Rooted in research, the Teach CVI tools screen for suspicion of CVI, and cover lower, middle, and higher visual functions. Leading medical professionals in the field use these tools in clinical assessment.

Boy with glasses paints on a yellow paper on a slant board

CVI Protocol Doctor’s Letter

The CVI Perkins Protocol is a digital assessment tool rooted in research. The CVI Protocol generates a doctor’s letter based on results from a file review, student profile, and parent interview.

Resources for Patient Families

Equip families in your care with the resources they need to navigate a CVI diagnosis. A timely diagnosis is the gateway to life-changing services for kids with CVI.

Family with a mom, dad, and two boys painting on a lit up table


A comprehensive and trusted website rooted in research and centers the lived experiences of people with CVI and their families.

Girl wearing glasses places plant food in a light up vase with water

CVI Visual Behaviors

In-depth learning about CVI behaviors commonly evaluated and recognized by major theorists.

Baby biting the handle of a red pail while lying on a black blanket

CVI Early Intervention

Find fact-packed, accessible information about starting EI, IFSPs, home routines, and emotional insights

A student with CVI learns to spell "Mom" using an accessible touchscreen display

CVI Now IEP Guide

Walks through the IEP process from beginning to end with CVI-specific explanations and advice.

CVI Research Highlights

Watch talks and webinars from researchers and clinicians in the CVI field. Read recent CVI scientific research. Explore current CVI studies.

Be the first to know about the latest CVI research and resources

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The CVI Center

We are urgently confronting CVI

…through education, innovation, and collaboration. Our approach is research-based and whole-child-focused. Join us!

Teenager plays with a sparkler that lights up his face at nighttime
Henry’s CVI was missed by doctors and educators until he was 5 years old.

Visit CVI Now, the go-to website for CVI

A deep, trusted resource that centers CVI voices and follows
current research.