Resources for Patient Families
Equip families in your care with the resources they need to navigate a CVI diagnosis. A timely diagnosis is the gateway to life-changing services for kids with CVI.
Kids with CVI Can’t Wait
CVI is a research priority for NEI/NIH
- The National Institutes of Health (NIH) hosted a CVI workshop on November 17, 2023, to foster awareness, increase the CVI research pool, establish consensus on CVI and the diagnostic process, and build a CVI registry. You can watch a recording of the entire day’s presentations.
- “The fact that we have representation from the eye, the brain, and development just tells you that [NIH] understands just how complicated CVI is. There is a saying that if you give people a voice, eventually they will be heard. And that’s how change happens. Today is proof that that’s a true statement. This has been a long journey. We have a lot more to do,” -Dr. Lotfi Merabet, co-chair of the NIH CVI Workshop.
- “The condition [CVI] has historically been under-recognized.” –NEI Strategic Plan: Vision for the Future.
Explore our CVI
Research Library
Read current peer-reviewed research about CVI, the visual system, and the brain in our Research Library, which will continue to evolve as new research emerges.
CVI Screening and Diagnosis Resources
“A patient is neither uncooperative nor untestable. It is the responsibility of the provider to create an environment where the patient can be successful.”
—Dr. Barry Kran, OD, FAAO
Intersection of CVI and Ocular Clinical Assessment
Dr. Nicole Ross, OD, MSc, FAAO, presents CVI, co-occurring ocular conditions, and how she evaluates and diagnoses CVI.
No CVI patient is untestable
Dr. Barry Kran, OD, FAAO, shares how he evaluates children suspected of having CVI and his approach to working with patients, no matter their complexities.
CVI Screening Tools
Rooted in research, the Teach CVI tools screen for suspicion of CVI, and cover lower, middle, and higher visual functions. Leading medical professionals in the field use these tools in clinical assessment.
CVI Protocol Doctor’s Letter
The CVI Perkins Protocol is a digital assessment tool rooted in research. The CVI Protocol generates a doctor’s letter based on results from a file review, student profile, and parent interview.
CVI Now
A comprehensive and trusted website rooted in research and centers the lived experiences of people with CVI and their families.
CVI Visual Behaviors
In-depth learning about CVI behaviors commonly evaluated and recognized by major theorists.
CVI Early Intervention
Find fact-packed, accessible information about starting EI, IFSPs, home routines, and emotional insights
CVI Now IEP Guide
Walks through the IEP process from beginning to end with CVI-specific explanations and advice.
CVI Research Highlights
Watch talks and webinars from researchers and clinicians in the CVI field. Read recent CVI scientific research. Explore current CVI studies.
- The CVI Center’s video library on CVI Research and Clinical Practice with talks by Dr. Michael Chiang, Dr. Lotfi Merabet, Dr. Corrina Bauer, Dr. Glenn Prusky, Dr. Nicole Ross, Dr. Barry Kran
- Clinical assessment, investigation, diagnosis and initial management of cerebral visual impairment: a consensus practice guide. Pilling, et al. 2022 (link)
- Prevalence of Strabismus in Premature Children With and Without PVL, Khanna, et al. 2022 (link)
- The Multidisciplinary Guidelines for Diagnosis and Referral in Cerebral Visual Impairment. Boonstra, et al. 2022 (link)
- The Laboratory for Visual Neuroplasticity, Dr. Lotfi B. Merabet, The Massachusetts Eye and Ear Infirmary, Schepens Eye Research Institute, Harvard Medical School
- The Bauer Lab of Neuroimaging and Vision Science at the Gordon Center for Medical Imaging at Massachusetts General Hospital (MGH) and Harvard Medical School
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