Who We Are
- The New England Consortium on Deafblindness (NEC) is a "community of practice" focused on combined vision and hearing loss, and serving children and their families in Connecticut, Maine, Massachusetts, New Hampshire & Vermont. The NEC grant is funded by the federal Office of Special Education Programs (OSEP), to build local and state capacity to improve outcomes for children who are deafblind through family and service provider learning and networking opportunities.
- Invited speakers include national representatives, parent leaders, and disability advocates.
What You Will Learn
- The NEC Family Learning Series will provide a range of topics and activities that support learning opportunities for parents of children with combined vision & hearing loss (deafblindness).
- Participants will gather in person or login online, meet other parents and caregivers (grandparents, guardians, adult siblings, supporters), share challenges and successes, learn strategies for building family routines that support their child's language/communication as well as charting a good life now and in the future.
- The goal of the learning series is to build the skills and knowledge of family members of children with combined vision and hearing loss (deafblindness) to be more engaged in the person-centered-planning and Individual Service Plan (IEP/IFSP) process.
- It is designed to help families articulate their vision of what they want/don’t want for their son or daughter, identify and access key supports, and have conversations with their family member and supporters about effective planning strategies.
- Using the framework — Charting the Life Course (CtLC) — learning sessions will help parents and caregivers think about what they need to know, identify how to find or develop supports, and discover what it takes to live the lives they want to live.
- Families may focus on their current situation but may also find it helpful to look ahead to start thinking about what they can do or learn that will help build a productive life in the future.
- CtLC was developed by Missouri Family to Family, housed at the UMKC Institute for Human Development, Missouri’s University Center for Excellence in Developmental Disabilities, in partnership with the Missouri Division of Developmental Disabilities.
When: May 3rd, 2019 — Kick-Off Parent Luncheon
Time: 10:00 AM – 2:00 PM
Location: Grousbeck Center – RM N10 — Perkins, Watertown, MA 02472
- Provide parents opportunities to network and learn from each other
- Increase parent knowledge and use of new tools and strategies to support planning and self-advocacy for their child
- Attend training or log into video conference, meet and connect with families who have children with combined vision and hearing loss
- Learn about the Charting the Life Framework and do hands on activities
- Identify strategies for self-care
- Participants will create an individual action plan, share ideas and lessons learned.
- Lunch will be provided; Mileage reimbursement is available.
Charting the LifeCourse Family Perspective Curriculum Structure:
- Video: Charting the LifeCourse (CtLC) Overview
- Module 1: Family Perspective Portfolio
- Module 2: Digging Deeper to Think About the Future of Your Family Member
- Quick Survey
Space is limited. Secure your spot today!