Experiencing the world, storytelling, engaging in play schemas and daily routines, building relationships, going on adventures, listening to music, and much more are all part of the fabric that builds literacy skills. Every kid with CVI is ready to engage in literacy, no matter the age or what they are doing. Working on literacy skills is hard for some kids with CVI (read about the 6 ways CVI impacts the reading process), but there is always a path forward.
We asked our CVI Now parent community: What are some creative ways you incorporate literacy and concept development at home?
Here are some general examples of parent responses that might offer some inspiration!
We know how powerful it is to read to our children, but it can be tough to do after a long day at school or right before bed when the fatigue has totally set in for your child with CVI. A literacy routine at home can be much more than sitting down and reading a full book. Here are some ways to rethink reading time.
“My son used to prefer really repetitive books with text that was easy to predict. Once he was familiar with a book, I would leave out words, and he would fill them in verbally. I started with things like end rhymes, and then words in less predictable places, and sometimes entire simple phrases. This definitely supported literacy skills for him because he can pick up a familiar book and ‘read’ it with the right cadence. So even if he isn’t getting the words right, he has the gist of the story, the cadence and even some rhyming structure. We’re on an Elephant and Piggie kick right now. Those are SO FUN. And they’re really really simple, with large font and color coding for the speakers. My son has learned a couple of words from that book — NO! especially.” —Kira, CVI Mom
Create stories about what your child experiences every day. It could be about eating their favorite meal, doing the laundry, a recent adventure, building a Playmobil set, or a morning routine. There is a story in everything we do.
These stories could be told aloud with real objects, made into a print book with real photographs (add letters, words, sentences depending on your child’s needs), or put together as e-books. For some kids with CVI, the backlighting of an iPad or tablet supports visual attention and recognition. Programs like Keynote and Powerpoint offer features such as recording sound or speech on a page, adding movement to an image, and adding Alt Text for an image.
“I use Keynote on my son’s iPad to create short ebooks about his favorite things and experiences, as well as social stories to help anticipate something new. He loves the Instant Pot, so we created a short poem together about the sounds it makes and the foods we like to cook in it. I put one image per page on a black background (real photographs of the Instant Pot and food ingredients), recorded a line of the poem for each page (Henry even recorded a line or two!), and added some slow movement to each image. Light and movement still support visual attention and recognition of 2D. I added the phrase Instant Pot at the end in his preferred presentation based on his Learning Media Assessment results. Then I put the presentation on autoplay, so he can follow along with his ebook, almost like watching a simple video.” —Rachel, CVI mom
Many kids with CVI use a calendar system (object, tactile, visual) to help them anticipate what’s coming up in their day. Calendar time is an important part of developing literacy skills. One CVI parent shared how she incorporates calendar time each morning.
“My son starts his school day with the calendar and typing his name and date. I made a calendar that he can take parts of it off to look at individually and then he works on finding his way around the calendar. We also linked his AAC device to his iPad so he can type directly on it. He types his full name and date.” —Barbara, CVI mom
Writing can be tough for some kids with CVI for a myriad of reasons (difficulty with visual motor and fine motor skills, impact of clutter and visual field loss, difficulty with spatial awareness and spatial configurations). No matter if your child is an emerging writer, handwrites, types, uses an AAC device, or uses speech-to-text software, there are fun ways to incorporate writing into your daily routines. Here are some ideas:
“I have my son, Henry, ‘write’ (scribble) a list of what he wants from the grocery store. We think of ideas together. We may go find the food in the kitchen or look at a few pictures on his iPad. I make sure I write down what he says for later in the store. We take his list to the store, I say: “Henry, take out the list in your pocket, unfold the paper, and tell me an item that we need.” I want him to know that writing has meaning, that marks/symbols on a page have meaning. As he gets used to this routine, he’ll have a familiar context to work on his writing skills.” —Rachel, CVI Mom
Check out 8 literacy resources for children with CVI and explore Voices from the community to learn about more resources from CVI parents.