Loading Events
Two boys reading a book together
June 26, 2022 | 4:00 PM

Perkins hosts CVI: Collaboration for Change Conference

Join leading experts in the CVI community June 26-28, 2022, to learn about current CVI research, promising practices, and advocacy.

CVI: Collaboration for Change

There is power in meaningful collaboration. You’re invited to join leading experts in the CVI community to learn about current CVI research, promising practices, and advocacy. Together, we can change the world for children with CVI and their families.

  • Conference held at the Revere Hotel in Boston—book hotel block rate for $179/night.
  • Download the full conference agenda and review the Covid protocols.
  • Continuing Ed Credits: PDPs, ACVREP, CTLE, CE: 10 hours; ASHA, AOTA: 1.0 CEUs; CME, COPE: 10 hours (AMA PRA Category 1 Credits TM, awarded by Boston Children’s Hospital)
  • Registration Fees: In-person rate $475. Registration includes a cocktail reception on June 26 and breakfast and lunch on June 27-28. Recorded plenary sessions post-conference $199.
  • Full and partial scholarships available for families and individuals with CVI upon request.

Let’s collaborate to urgently confront the world’s leading cause of childhood blindness.

Cortical/Cerebral Visual Impairment (CVI) is a brain-based visual impairment, affecting over 150,000 children in the U.S. alone, a number that keeps growing. CVI is not new, it’s misunderstood and under-diagnosed. With timely diagnosis, early intervention and appropriate educational programs, we can help kids with CVI access their world.

Every person with CVI can learn and every person with CVI should define their own success. No matter their zip code, no matter how their CVI manifests, every individual has the right to access opportunities that will empower them to reach their full potential.

Meaningful collaboration across sectors improves the outcomes of individuals with CVI. The conference will be a gathering place of ideas representing diverse perspectives in the field. Join us and the wide range of stakeholders in the CVI community: individuals with CVI, families, medical professionals, educators, therapists, providers, and advocates.

Registration and Tickets

Tickets

The numbers below include tickets for this event already in your cart. Clicking “Get Tickets” will allow you to edit any existing attendee information as well as change ticket quantities.
CVI Conference Virtual Ticket
Receive access to the recorded sessions after the event. Please note that this ticket pricing does not include in-person attendance.
$199.00
Unlimited
CVI Conference In-Person
$475.00
90 available

Scholarships available

Families and individuals with CVI are welcome to apply for a scholarship to attend the conference.

Keynote

The National Eye Institute (NEI) at the National Institutes for Health (NIH) set CVI as a research priority in their Strategic Plan: Vision for the Future. This is a big moment for the CVI community.

The condition [CVI] has historically been under-recognized.” -NEI Strategic Plan: Vision for the Future

Hear about how CVI is part of NEI’s mission that is centered around driving innovative research, fostering collaboration, and educating providers, scientists, policymakers, and the public.

Speakers

  • A picture of Brenda Allair smiling in front of a black background

    Brenda Allair, M.Ed., TVI

    Infant-Toddler Coordinator, Perkins School for the Blind
    Meet Brenda
  • Headshot of Dr. Baglieri, smiling in front of a white background

    Anna Marie Baglieri, OD

    Optometrist, Boston Children’s Hospital; Instructor, Harvard Medical School
    Meet Anna
  • Headshot of Dr. Corinna Bauer wearing a blue shirt and brown blazer

    Corinna Bauer, Ph.D.

    Instructor in Ophthalmology, Harvard Medical School; Investigator, Massachusetts Eye and Ear
    Meet Corinna
  • A picture of Maurice Belote smiling in front of a black background

    Maurice Belote

    Retired Project Coordinator and Adjunct Faculty Member, California Deafblind Services at San Francisco State University
    Meet Maurice
  • Student being hugged by woman

    Rachel Bennett, M.Ed

    Assistant Director of CVI Now, Parent Advocacy and Support at the CVI Center at Perkins
    Meet Rachel
  • A picture of Tina outside in front of a fence wearing sunglasses

    Tina Zhu Xi Caruso

    Photographer
    Meet Tina
  • Picture of Michael Chiang smiling wearing a suit and tie

    Michael Chiang, M.D.

    Director, National Eye Institute at the National Institutes of Health
    Meet Michael
  • Nai standing in front of a sea of bright yellow flowers on a sunny California hill top with a creamy blue sky in the background. Nai is holding a white cane and wearing a purple T-shirt that reads "Nobody knows I have EDS”.

    Nai Damato

    Assistive Technology Trainer, Braille Instructor, American Sign Language (ASL) Interpreter, DeafBlind Specialist
    Meet Nai
  • Headshot of Elise smiling in front of a blue background

    Elise Darrow, TSVI, O&M

    CVI Initiative Manager, Teacher of Students with Visual Impairments, and Orientation and Mobility Specialist, Anchor Center for Blind Children
    Meet Elise
  • A picture of Rebecca Davis smiling

    Rebecca Davis

    Transition Projects Director, Federation for Children with Special Needs
    Meet Rebecca
  • Headshot of Dr. Forte smiling wearing a black blazer

    Ellen Forte, Ph.D.

    CEO and Chief Scientist, edCount
    Meet Ellen
  • Headshot of Melody smiling

    Melody Furze, Ph.D.

    Certified Teacher of the Visually Impaired, The Anchor Center for Blind Children; Co-Founder, Neurological Visual Impairment Division (NVID) of AER
    Meet Melody
  • A picture of Angela Gowans smiling

    Angela Gowans

    Educational Consultant, New England Educational Advocacy
    Meet Angela
  • A picture of Amanda Griffith-Atkins smiling.

    Amanda Griffith-Atkins, MS, LMFT

    Licensed Marriage and Family Therapist and Founder of Amanda Atkins Counseling Group
    Meet Amanda
  • A picture of Dr. Heidary wearing glasses and smiling

    Gena Heidary, MD, Ph.D.

    Associate Professor, Harvard Medical School; Ophthalmologist, Director of Neuro-Ophthalmology Service and Director of Pediatric Ophthalmology Fellowship Program, Boston Children’s Hospital
    Meet Gena
  • A picture of Valery Kircher smiling next to a body of water.

    Valery Kircher, TVI, COMS

    Teacher for the Visually Impaired and Certified Orientation and Mobility Specialist; Education Coordinator, Virginia Department for the Blind and Vision Impaired
    Meet Valery
  • A picture of Barry Kran smiling in front of a white background

    Barry S. Kran, OD, FAAO

    Professor and Optometric Director, NECO Center for Eye Care at Perkins
    Meet Barry
  • A picture of Nicole Laffan smiling wearing a blue dress

    Nicole Laffan, Au.D., CCC-A/SLP

    Audiologist; Speech-Language Pathologist; Assistant Clinical Professor, Northeastern University
    Meet Nicole
  • Picture of Dr. Landau smiling with her head tilted to the side

    Barbara Landau, Ph.D.

    Dick and Lydia Todd Professor, John Hopkins University
    Meet Barbara
  • A picture of Barbara Lopez smiling wearing a blue shirt and black blazer

    Barbara Lopez, Ph.D., LMHC

    Developmental Psychologist; Contributing Faculty, Walden University; CVI Parent Advocate
    Meet Barbara
  • Close up of Dr. Lueck

    Amanda Hall Lueck, Ph.D.

    Professor Emerita of Special Education and Communicative Disorders , San Francisco State University
    Meet Amanda
  • A picture of Sylvia smiling in front of a gray background

    Sylvia Mangan, SLP

    Speech-Language Pathologist, Perkins School for the Blind
    Meet Sylvia
  • A picture of Jessica Marquardt standing, smiling wearing a spring dress

    Jessica Marquardt, M.A.

    CVI Parent Advocate; Creator of Kaleidoscope: The CVI Podcast; Internal Communications Lead, JMP/SAS
    Meet Jessica
  • Headshot of Ellen Mazel

    Ellen Mazel, M.Ed., CTVI

    Director of CVI Research and Development at the CVI Center at Perkins
    Meet Ellen
  • A picture of Anne McComiskey.

    Anne V. McComiskey, M.Ed., TVI

    Teacher of the Visually Impaired and Early Vision Education Specialist
    Meet Anne
  • Headshot of Dr. Merabet smiling wearing a suit and tie

    Lotfi Merabet, OD, Ph.D., MPH

    Associate Professor of Ophthalmology, Harvard Medical School; Director, The Laboratory for Visual Neuroplasticity. Massachusetts Eye and Ear, and Schepens Eye Research Institute; Staff Optometrist, Vision Rehabilitation Service. Massachusetts Eye and Ear, and Spaulding Rehabilitation Hospital
    Meet Lotfi
  • A picture of Dr. Prusky wearing glasses and smiling

    Glen Prusky, Ph.D.

    Director, Laboratory for Visual Disease and Therapy at the Burke Neurological Institute, Weill Cornell Medicine-Cornell University
    Meet Glen
  • Headshot of Tammy Reisman smiling in front of a gray background

    Tammy Reisman, TVI, CAES

    Coordinator, for the Vision Studies Program at UMass Boston; Teacher of the Visually Impaired
    Meet Tammy
  • Headshot of Dr. Ross smiling wearing her white lab coat

    Nicole Ross, OD, MS, FAAO

    Associate Professor of Optometry, New England College of Optometry; Attending Optometrist, NECO Center for Eye Care
    Meet Nicole
  • Headshot of Burju Sari

    Burju Sari, M.Ed., TVI

    CVI Coordinator at the CVI Center at Perkins
    Meet Burju
  • Headshot of Lacey Smith, smiling wearing bright red

    Lacey Smith

    CVI Project Coordinator
    Meet Lacey
  • Marguerite Tibaudo smiling on the campus of Perkins School for the Blind

    Marguerite Tibaudo, M.Ed., TVI

    Assistant Director of CVI Assessment and Interventions at the CVI Center at Perkins
    Meet Marguerite
  • Matt Tietjen wearing glasses and smiling

    Matt Tietjen, M.Ed., CTVI

    Certified Teacher of the Visually Impaired and State Education Consultant
    Meet Matt
  • A picture of HuyenTran Vo smiling

    HuyenTran Vo, TVI, COMS, CVRT, CATIS

    Lowerschool and Secondary Teacher, Perkins School for the Blind
    Meet HuyenTran
  • Amelia is wearing glasses, smiling, and standing in front of a blue background

    Amelia Willcox, SLP

    Speech-Language Pathologist, Perkins School for the Blind
    Meet Amelia
  • Headshot of Ilse Willems wearing glasses and smiling

    Ilse Willems, M.Ed and TVI

    CVI Coordinator at the CVI Center at Perkins
    Meet Ilse
  • Headshot of Mary Zatta wearing red glasses and smiling

    Mary Zatta, Ph.D.

    Director of CVI Training at the CVI Center at Perkins
    Meet Mary

Sessions

June 26 (in-person & recorded)

Opening Session and Awards

Keynote by Dr. Michael Chiang, award ceremony, and cocktail reception to follow.

June 27 AM (in-person & recorded)

CVI Voices

Hear from individuals and families living with CVI about successes and possibilities that they experience.

June 27 AM (in-person & recorded)

A Data Driven Approach to CVI

Hear from Dr. Ellen Forte, a leading expert in the design and evaluation of assessment tools and education standards, on ways to use data to better understand and serve children with CVI.

June 27 PM (in-person)

A Call to Action

Hear from parents and advocates with experience on the frontlines as they discuss the link between individual advocacy and systems change.

June 27 PM (in-person)

Perkins CVI Protocol

Ellen Mazel and Marguerite Tibaudo discuss the development of Perkins’ new digital assessment tool and the opportunity it provides to expand evaluation, learning, and further research into CVI.

June 27 PM (in-person)

The Expanded Core Curriculum (ECC) and CVI

This panel will discuss the importance of the Expanded Core Curriculum in the life of a child with CVI with a focus on math, literacy, and assistive technology.

June 27 PM (in-person)

Blending Systematic Instruction with Promising Practices

What comes after a comprehensive CVI Assessment? Learn about the essential components of educational programming for students with CVI.

June 27 PM (in-person)

Auditory Processing Disorder and CVI

It has been said that central auditory processing disorder (CAPD) is to hearing what CVI is to vision. This session will dive into the diagnostic process and explore evidence-based strategies that can be used for children with CVI.

June 27 PM (in-person)

CVI Educational Assessment Guidelines

This panel will discuss the collaboration of educators and medical professionals in the process of developing the guidelines and ensuring inclusivity.

June 27 PM (in-person & recorded)

How I See the World

Tina, an adult with CVI, shares her photography and art to show what it’s like living with CVI. Tina calls her CVI “silent blindness.”

June 28 AM (in-person & recorded)

Research Updates: Collaboration & Study Design

Learn about recent advances in scientific research relating to the assessment of visual abilities in CVI and in other neurodevelopmental disabilities. The focus will be on the role of collaboration with respect to advancing research aims and the importance of incorporating scientific rigor.

June 28 AM (in-person)

Research Updates: Follow up Discussion

As a follow-up to the plenary session, a more personal account will be presented by clinicians and researchers on the value of collaboration in relation to advancing research initiatives and the delivery of clinical care.

June 28 AM (in-person)

Babies and CVI

Early identification and intervention are critical for infants born with CVI. Learn about strategies for supporting families so they can better understand CVI and interventions that will stimulate their child’s brain plasticity and development.

June 28 AM (in-person)

CVI and AAC

This presentation will review key collaborative steps in designing and implementing accessible Augmentative Alternative Communication (AAC) systems for individuals with CVI.

June 28th (in-person)

Let’s Talk About the Hard Stuff

We invite CVI families and individuals with CVI to a special breakfast to gather, share, and talk about the hard stuff. The conversion will be facilitated by Amanda Griffith-Atkins, family therapist and disability parent.

A young boy sitting with his teacher at a table, as they both look at an iPad.

Planning for your conference visit

We are excited to come together, collaborate, learn, and urgently confront the leading cause of blindness. Here are a few resources to help you plan your visit.

Perkins School for the Blind is approved by the Continuing Education board of the American Speech-Language-Hearing Association (ASHA) to provide continuing education activities in speech-language pathology and audiology. See the course information for number of ASHA CEUs, instructional level, and content area. ASHA CE Provider approval does not imply endorsement of course content, specific products, or clinical procedures.

ASHA Brand Block

A unique sponsorship opportunity for supporting businesses

There is power in meaningful collaboration. As a sponsor of the Collaboration for Change Conference, you’ll have the unique opportunity to demonstrate your commitment to improving the lives of children with CVI to an audience of 200 professionals and families; ensure that all families, regardless of financial need, can access the emerging research and promising practices at the conference; and align your brand with Perkins’ two-century legacy of educational excellence and innovation.

Together, we will foster meaningful collaboration and change the world for children with CVI.

Boy walks outside on a wooded path with his walker

Transformation Sponsor $10,000

  • Acknowledgment from the stage during opening remarks
  • Recognition on official welcome signage located at the entrance of the exhibit hall
  • 10 tickets to opening night reception
  • Logo included in Opening Session
  • Exhibit Table for Monday and Tuesday
Boy works with female teacher during speech class.

Inspiration Sponsor $5,000

  • Recognition on official welcome signage located at the entrance of the exhibit hall
  • 5 tickets to opening night reception
  • Logo included in Opening Session
  • Exhibit Table for Monday and Tuesday
Girl with CVI grabs an item from her red slant board during math class

Collaboration Sponsor $2,500

  • Recognition on official welcome signage located at the entrance of the exhibit hall
  • 2 tickets to opening night reception
  • Logo included in Opening Session
  • Exhibit Table for Monday and Tuesday

Join as an exhibitor

Apply now to be a part of our exhibitor hall at the CVI: Collaboration for Change Conference

Register today!

Share this exciting conference news with your professional and personal communities.

We’re looking forward to seeing you there!