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June 23, 2024 | 4:00 PM

CVI Conference: Building Meaningful Recognition

Perkins hosts the 2024 CVI Conference: Building Meaningful Recognition on June 23–25, 2024 at the Revere Hotel, Boston.

2024 Perkins CVI Conference

June 23 – 25, 2024

Revere Hotel Boston

When it comes to Cerebral/Cortical Visual Impairment (CVI)—recognition matters. We’re honored to convene the CVI community to gather and learn from leaders in the field, medical and research experts, educators, people with CVI, and families.

We will explore quality assessment and instructional practices that help build meaningful recognition and access, current research about CVI, and advocacy resources for families and providers boldly driving change.

Together we can change the world for people with CVI.

Join Us!

A block that says, "ASHA CE Approved Provider; Perkins School for the Blind; Level Various; ASHA CEUs 1.1"

Speakers are not being paid for their presentations, but their registration fees are being waived.

Speakers do not have any nonfinancial relationships to disclose.

Individual disclosures can be found in speakers’ individual bios on this page.

Did any other organization(s) provide financial or in-kind support?

Yes, we have sponsors and supporters that have provided financial or in-kind support. Scroll down to see the organizations that have provided financial or in-kind support.

Register today!

When: June 23 to 25, 2024

Where: Revere Hotel, Boston, MA

Tickets

The numbers below include tickets for this event already in your cart. Clicking “Get Tickets” will allow you to edit any existing attendee information as well as change ticket quantities.
Regular tickets
Ends on 06/19/2024
$549.00
Unlimited
Plenary Session Recording Package
Recordings of the plenary sessions, which will be sent at the end of the summer. This package will be about five and a half hours of content. Ends on 08/31/2024
$199.00
Unlimited

Featured Speakers

  • A photo of a woman with red hair and a green jacket holding her white cane under her chin.

    Dagbjört Andrésdóttir

    Adult with CVI; Blogger; Classical Singer
    Meet Dagbjört
  • A picture of Maurice Belote smiling in front of a black background

    Maurice Belote

    Adjunct Faculty Member, California Deafblind Services at San Francisco State, Mount St. Mary’s University Los Angeles and the University of South Dakota University
    Meet Maurice
  • A photo of a woman with red hair and bangs smiling.

    Molly Bennett, MS, OTR/L

    Pediatric Occupational Therapist, Perkins School for the Blind
    Meet Molly
  • Henry being hugged by his mother, Rachel

    Rachel Bennett

    Director of CVI Now, Parent Advocacy and Support at the CVI Center at Perkins
    Meet Rachel
  • A picture of Tina outside in front of a fence wearing sunglasses

    Tina Zhu Xi Caruso

    CVI Advocate, Adult with CVI, Photographer
    Meet Tina
  • A photo of a woman with a white coat.

    Melinda Chang, M.D.

    Pediatric Neuro-Ophthalmologist, Children’s Hospital Los Angeles; Assistant Professor of Clinical Ophthalmology, University of Southern California
    Meet Melinda
  • Nai standing in front of a sea of bright yellow flowers on a sunny California hill top with a creamy blue sky in the background. Nai is holding a white cane and wearing a purple T-shirt that reads "Nobody knows I have EDS”.

    Nai

    Assistive Technology Trainer, Braille Instructor, American Sign Language (ASL) Interpreter, DeafBlind Specialist
    Meet Nai
  • A picture of Amanda Griffith-Atkins smiling.

    Amanda Griffith-Atkins, MS, LMFT

    Licensed Marriage and Family Therapist and Founder of Amanda Atkins Counseling Group
    Meet Amanda
  • A photo of a blonde woman in glasses, wearing a red shirt, smiling.

    Kathryne Hart

    CVI Parent; Chairperson, Louisiana State Interagency Coordinating Council for Early Intervention; Supply Manager (Chemical Industry)
    Meet Kathryne
  • A photo of a woman with curly hair and brown glasses smiling next to her teenage son who is smiling and wearing headphones.

    Mara LaViola

    CVI Parent; Chief Operations Officer, Texans for Special Education Reform; Board Member, Autism Society of Texas and Texas Parent to Parent
    Meet Mara
  • A photo of Richard Legge smiling. He is wearing glasses, a tie and a suit jacket.

    Richard H. Legge, M.D.

    Neuro-ophthalmologist and Assistant Professor in the Department of Ophthalmology and Visual Sciences, Truhlsen Eye Institute
    Meet Richard
  • A photo of a woman with long brown hair and a bright blue shawl smiling.

    Ali Mahady

    Manager of CVI Outreach and Engagement at the CVI Center at Perkins
    Meet Ali
  • A blonde woman with hair right past her shoulders smiling in the front hall of Perkins.

    Sylvia Mangan, SLP

    CVI Coordinator at the CVI Center at Perkins
    Meet Sylvia
  • Headshot of Ellen Mazel

    Ellen Mazel

    Director of CVI Research and Development at the CVI Center at Perkins
    Meet Ellen
  • A photo of Nicola McDowell smiling.

    Nicola McDowell, PhD

    Senior Lecturer in the Institute of Education, Massey University, New Zealand
    Meet Nicola
  • A photo of a woman with brown hair and a white blazer smiling at her desk.

    Karalyn McGrorty Derstine, Ed.D.

    CVI Mom; Professor of Education and American Studies in Suburban Philadelphia
    Meet Karalyn
  • Headshot of Dr. Merabet smiling wearing a suit and tie

    Lotfi Merabet, OD, PhD, MPH

    Associate Professor of Ophthalmology, Harvard Medical School; Director, The Laboratory for Visual Neuroplasticity. Massachusetts Eye and Ear, and Schepens Eye Research Institute; Staff Optometrist, Vision Rehabilitation Service. Massachusetts Eye and Ear, and Spaulding Rehabilitation Hospital
    Meet Lotfi
  • A photo of a woman with glasses and a Massachusetts General Hospital white coat.

    Patricia Musolino, MD, PhD

    Pediatric Neurologist, Neurologist, Critical Care Neurologist; Co-Director Pediatric Stroke and Cerebrovascular Service; Assistant Professor of Neurology Harvard Medical School; Co-Director of the Neurobiology of Disease Harvard Advance Course, Massachusetts General Hospital
    Meet Patricia
  • A picture of Dr. Prusky wearing glasses and smiling

    Glen Prusky, PhD

    Professor of Physiology and Biophysics, Burke Neurological Institute Weill Cornell Medicine; Director, Center for Vision Repair Burke Neurological Institute; Director, Vision Research Blythedale Children’s Hospital
    Meet Glen
  • A photo of John Ravenscroft smiling.

    John Ravenscroft, PhD

    Chair of Childhood Visual Impairment, The University of Edinburgh
    Meet John
  • Headshot of Tammy Reisman smiling in front of a gray background

    Tammy Reisman, TVI, CAES

    Coordinator, for the Vision Studies Program at UMass Boston; Teacher of the Visually Impaired
    Meet Tammy
  • Headshot of Lacey Smith, smiling wearing bright red

    Lacey Smith

    CVI Parent Community Manager at CVI Now
    Meet Lacey
  • Marguerite Tibaudo smiling on the campus of Perkins School for the Blind

    Marguerite Tibaudo, M.Ed., TVI

    Education Director of the Deafblind Program
    Meet Marguerite
  • Matt Tietjen wearing glasses and smiling

    Matt Tietjen, M.Ed., CTVI

    Certified Teacher of the Visually Impaired and State Education Consultant
    Meet Matt
  • Headshot of Ilse Willems wearing glasses and smiling

    Ilse Willems, M.Ed and TVI

    Senior Director at the CVI Center at Perkins
    Meet Ilse
  • A photo of a man smiling in front of purple flowers.

    Jeremy Wolfe, PhD

    Professor of Ophthalmology and Professor of Radiology at Harvard Medical School; Director of the Visual Attention Lab at Brigham and Women’s Hospital in the Department of Surgery
    Meet Jeremy

Sessions

Full schedule can be found here.

Sunday, June 23, 2024

Keynote: Recognizing CVI and the Importance of Families

Patricia Mussolino, MD, PhD

Monday, June 24, 2024

CVI Prevalence Data

The CVI Center at Perkins

Monday, June 24, 2024

Prerequisites of Perception and Functional Application

John Ravenscroft, PhD and Marguerite Tibaudo, MEd

Monday, June 24, 2024

Auditory Processing Disorder

Maurice Belote, MEd

Monday, June 24, 2024

CVI Ally/CVI Matrix

Matt Tietjen, MEd, Nai, Rachel Bennett, MEd

Monday, June 24, 2024

The Perkins CVI Protocol

Ilse Willems, MEd

Monday, June 24, 2024

Parent Advocacy

Kathryne Hart, Mara LaViola, Ali Mahady, M.S., Lacey Smith, TVI, M.Ed., Karalyn McGrorty Derstine, Ed.D., Rachel Bennett, M.Ed.

Monday, June 24, 2024

CVI and Dual Media Learners

Tammy Reisman, MEd 

Monday, June 24, 2024

The Austin Assessment – How it Relates to Recognition

Nicola McDowell, PhD

Monday, June 24, 2024

What Does recognition Look Like?

Ellen Mazel, M.Ed., CTVI

Monday, June 24, 2024

Recognition Across Related Services: OT, SLP, O&M

Molly Bennett, Nikola Wolfe, Sylvia Mangan, SLP

Monday, June 24, 2024

Panel of Adults with CVI – What Supports Access and Recognition?

Nai, Nicola McDowell, Tina Zhu Xi Caruso, Dagbjört ​​Andrésdóttir

Tuesday, June 25, 2024

“Eye Movements As A Window Into The Brain Function”

Jeremy Wolfe, PhD, Melinda Chang, MD, Glen Prusky, PhD, Lotfi Merabet, OD, PhD, MPH

Tuesday, June 25, 2024

NEI Update

.

Tuesday, June 25, 2024

Chasing CVI – A Curious Clinician’s Journey

Richard H. Legge, MD

Exhibitors & sponsors

Two students work together as they engage with an adapted book

Exhibitors

Apply to be an exhibitor at the 2024 conference! An early bird fee of $1,000 Is available until February 29, 2024. The regular fee is $1,250.

Sponsorships

We have five sponsorship packages available. Please email [email protected] for more information.

2024 Perkins CVI Conference Awards

Lifetime Achievement Award

  • Kim Charlson
  • Richard Legge, M.D.
  • Ellen Mazel, M.Ed.
  • Barry Kran, OD, FAAO

Champion Award

  • Patricia Musolino, M.D., Ph.D.
  • Nicola McDowell, Ph.D.

Thank you to our conference sponsors!

Exhibitors

Supporters