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June 23, 2024 | 4:00 PM

CVI Conference: Building Meaningful Recognition

Perkins hosts the 2024 CVI Conference: Building Meaningful Recognition on June 23–25, 2024 at the Revere Hotel, Boston.

2024 Perkins CVI Conference

June 23 – 25, 2024

Revere Hotel Boston

When it comes to Cerebral/Cortical Visual Impairment (CVI)—recognition matters. We’re honored to convene the CVI community to gather and learn from leaders in the field, medical and research experts, educators, people with CVI, and families.

We will explore quality assessment and instructional practices that help build meaningful recognition and access, current research about CVI, and advocacy resources for families and providers boldly driving change.

Together we can change the world for people with CVI.

Join Us!

The deadline to register for in-person tickets is Wednesday, June 19th.

A block that says, "ASHA CE Approved Provider; Perkins School for the Blind; Level Various; ASHA CEUs 1.1"
A photo stating that the CVI Conference attendance could result in 1.1 AOTA CEUs for introductory; professional issues. The course approval number is 9824.

Speakers are not being paid for their presentations, but their registration fees are being waived.

Speakers do not have any nonfinancial relationships to disclose.

Individual disclosures can be found in speakers’ individual bios on this page.

Did any other organization(s) provide financial or in-kind support?

Yes, we have sponsors and supporters that have provided financial or in-kind support. Scroll down to see the organizations that have provided financial or in-kind support.

Register today!

When: June 23 to 25, 2024

Where: Revere Hotel, Boston, MA

Tickets

The numbers below include tickets for this event already in your cart. Clicking “Get Tickets” will allow you to edit any existing attendee information as well as change ticket quantities.
Regular tickets
Ends on 06/19/2024
$549.00
Unlimited
Plenary Session Recording Package
Recordings of the plenary sessions, which will be sent at the end of the summer. This package will be about five and a half hours of content. Ends on 08/31/2024
$199.00
Unlimited

Featured speakers

  • A photo of a woman with red hair and a green jacket holding her white cane under her chin.

    Dagbjört Andrésdóttir

    Adult with CVI; Blogger; Classical Singer
    Meet Dagbjört
  • A picture of Maurice Belote smiling in front of a black background

    Maurice Belote

    Adjunct Faculty Member, California Deafblind Services at San Francisco State, Mount St. Mary’s University Los Angeles and the University of South Dakota University
    Meet Maurice
  • A photo of a woman with red hair and bangs smiling.

    Molly Bennett, MS, OTR/L

    Pediatric Occupational Therapist, Perkins School for the Blind
    Meet Molly
  • Henry being hugged by his mother, Rachel

    Rachel Bennett

    Director of CVI Now, Parent Advocacy and Support at the CVI Center at Perkins
    Meet Rachel
  • A picture of Tina outside in front of a fence wearing sunglasses

    Tina Zhu Xi Caruso

    CVI Advocate, Adult with CVI, Photographer
    Meet Tina
  • A photo of a woman with a white coat.

    Melinda Chang, M.D.

    Pediatric Neuro-Ophthalmologist, Children’s Hospital Los Angeles; Assistant Professor of Clinical Ophthalmology, University of Southern California
    Meet Melinda
  • Nai standing in front of a sea of bright yellow flowers on a sunny California hill top with a creamy blue sky in the background. Nai is holding a white cane and wearing a purple T-shirt that reads "Nobody knows I have EDS”.

    Nai

    Assistive Technology Trainer, Braille Instructor, American Sign Language (ASL) Interpreter, DeafBlind Specialist
    Meet Nai
  • A photo of Kaitlyn smiling in a blue shirt.

    Kaitlyn Dushay

    Product Manager at the CVI Center at Perkins
    Meet Kaitlyn
  • A photo of a man smiling with dark hair and a beard.

    Shefa Gordon, PhD

    Associate Director for Science Policy and Legislation, Office of Program Planning and Analysis, National Eye Institute, National Institutes of Health
    Meet Shefa
  • A picture of Amanda Griffith-Atkins smiling.

    Amanda Griffith-Atkins, MS, LMFT

    Licensed Marriage and Family Therapist and Founder of Amanda Atkins Counseling Group
    Meet Amanda
  • A photo of a woman with shoulder length blonde hair smiling.

    Kristina Hardy, PhD

    Program Director, Division of Clinical Research, National Institute of Neurological Disorders and Stroke, National Institutes of Health
    Meet Kristina
  • A photo of a blonde woman in glasses, wearing a red shirt, smiling.

    Kathryne Hart

    CVI Parent; Chairperson, Louisiana State Interagency Coordinating Council for Early Intervention; Supply Manager (Chemical Industry)
    Meet Kathryne
  • A photo of a woman with curly hair and brown glasses smiling next to her teenage son who is smiling and wearing headphones.

    Mara LaViola

    CVI Parent; Chief Operations Officer, Texans for Special Education Reform; Board Member, Autism Society of Texas and Texas Parent to Parent
    Meet Mara
  • A photo of Richard Legge smiling. He is wearing glasses, a tie and a suit jacket.

    Richard H. Legge, M.D.

    Neuro-ophthalmologist and Assistant Professor in the Department of Ophthalmology and Visual Sciences, Truhlsen Eye Institute
    Meet Richard
  • A photo of a woman with long brown hair and a bright blue shawl smiling.

    Ali Mahady

    Manager of CVI Outreach and Engagement at the CVI Center at Perkins
    Meet Ali
  • A blonde woman with hair right past her shoulders smiling in the front hall of Perkins.

    Sylvia Mangan, SLP

    CVI Coordinator at the CVI Center at Perkins
    Meet Sylvia
  • Headshot of Ellen Mazel

    Ellen Mazel

    Director of CVI Research and Development at the CVI Center at Perkins
    Meet Ellen
  • A photo of Nicola McDowell smiling.

    Nicola McDowell, PhD

    Senior Lecturer in the Institute of Education, Massey University, New Zealand
    Meet Nicola
  • A photo of a woman with brown hair and a white blazer smiling at her desk.

    Karalyn McGrorty Derstine, Ed.D.

    CVI Mom; Associate Director of Disability, Access and Section 504 Coordinator, Adjunct Assistant Professor of Education and American Studies in Suburban Philadelphia
    Meet Karalyn
  • Headshot of Dr. Merabet smiling wearing a suit and tie

    Lotfi Merabet, OD, PhD, MPH

    Associate Professor of Ophthalmology, Harvard Medical School; Director, The Laboratory for Visual Neuroplasticity. Massachusetts Eye and Ear, and Schepens Eye Research Institute; Staff Optometrist, Vision Rehabilitation Service. Massachusetts Eye and Ear, and Spaulding Rehabilitation Hospital
    Meet Lotfi
  • A photo of a woman with glasses and a Massachusetts General Hospital white coat.

    Patricia Musolino, MD, PhD

    Pediatric Neurologist, Neurologist, Critical Care Neurologist; Co-Director Pediatric Stroke and Cerebrovascular Service; Assistant Professor of Neurology Harvard Medical School; Co-Director of the Neurobiology of Disease Harvard Advance Course, Massachusetts General Hospital
    Meet Patricia
  • A photo of a woman with long blond hair smiling.

    Erika Nelson

    Program Manager, Office of Data Science and Health Informatics, National Eye Institute, National Institutes of Health
    Meet Erika
  • A picture of Dr. Prusky wearing glasses and smiling

    Glen Prusky, PhD

    Professor of Physiology and Biophysics, Burke Neurological Institute Weill Cornell Medicine; Director, Center for Vision Repair Burke Neurological Institute; Director, Vision Research Blythedale Children’s Hospital
    Meet Glen
  • A photo of John Ravenscroft smiling.

    John Ravenscroft, PhD

    Chair of Childhood Visual Impairment, The University of Edinburgh
    Meet John
  • Headshot of Tammy Reisman smiling in front of a gray background

    Tammy Reisman, TVI, CAES

    Coordinator, for the Vision Studies Program at UMass Boston; Teacher of the Visually Impaired
    Meet Tammy
  • Headshot of Lacey Smith, smiling wearing bright red

    Lacey Smith

    CVI Parent Community Manager at CVI Now
    Meet Lacey
  • Marguerite Tibaudo smiling on the campus of Perkins School for the Blind

    Marguerite Tibaudo, M.Ed., TVI

    Education Director of the Deafblind Program
    Meet Marguerite
  • Matt Tietjen wearing glasses and smiling

    Matt Tietjen, M.Ed., CTVI

    Certified Teacher of the Visually Impaired and State Education Consultant
    Meet Matt
  • Headshot of Ilse Willems wearing glasses and smiling

    Ilse Willems, M.Ed and TVI

    Senior Director at the CVI Center at Perkins
    Meet Ilse
  • A photo of a man smiling in front of purple flowers.

    Jeremy Wolfe, PhD

    Professor of Ophthalmology and Professor of Radiology at Harvard Medical School; Director of the Visual Attention Lab at Brigham and Women’s Hospital in the Department of Surgery
    Meet Jeremy
  • A photo of a woman with short hair, red glasses, and a purple and yellow scarf, smiling.

    Mara Yale, PhD

    Project Lead, Pediatric Stroke and Brain Injury Education Program
    Meet Mara

Sessions

Full schedule can be found here.

Sunday, June 23, 2024 – 5:00 pm

Grand Master Ballroom

Keynote: Recognizing CVI and the Importance of Families

Patricia Mussolino, MD, PhD

Monday, June 24, 2024 – 8:45 am

Grand Master Ballroom

CVI Prevalence Data

The CVI Center at Perkins

Monday, June 24, 2024 – 9:30 am

Grand Master Ballroom

Why Understanding Perception is Important to Understanding CVI

John Ravenscroft, PhD and Marguerite Tibaudo, MEd

Monday, June 24, 2024 – 11:00 am

6th Floor – Salada

Auditory Processing Disorder

Maurice Belote, MEd

Monday, June 24, 2024 – 11:00am

6th Floor – Bohea

CVI Ally/CVI Matrix

Matt Tietjen, MEd, Nai, Rachel Bennett, MEd

Monday, June 24, 2024 – 11:00 am

6th Floor – Singlo

The Perkins CVI Protocol

Ilse Willems, MEd, Kaitlyn Dushay

Monday, June 24, 2024 – 1:00 pm

6th Floor – Bohea

Parent Advocacy

Kathryne Hart, Mara LaViola, Ali Mahady, M.S., Lacey Smith, TVI, M.Ed., Karalyn McGrorty Derstine, Ed.D., Rachel Bennett, M.Ed.

Monday, June 24, 2024 – 1:00 pm

6th Floor – Salada

CVI and Dual Media Learners

Tammy Reisman, MEd 

Monday, June 24, 2024 – 1:00 pm

6th Floor – Singlo

The Austin Assessment – A CVI screening tool

Nicola McDowell, PhD

Monday, June 24, 2024 – 2:30 pm

6th Floor – Singlo

What Does recognition Look Like?

Ellen Mazel, M.Ed., CTVI

Monday, June 24, 2024

6th Floor – Salada

Recognition Across Related Services: OT, SLP, O&M

Molly Bennett, Nikola Wolfe, Sylvia Mangan, SLP

Monday, June 24, 2024

6th Floor – Bohea

Panel of Adults with CVI – What Supports Access and Recognition?

Nai, Nicola McDowell, Tina Zhu Xi Caruso, Dagbjört ​​Andrésdóttir

Tuesday, June 25, 2024

Grand Master Ballroom

“Eye Movements As A Window Into The Brain Function”

Jeremy Wolfe, PhD, Melinda Chang, MD, Glen Prusky, PhD, Lotfi Merabet, OD, PhD, MPH

Tuesday, June 25, 2024

Grand Master Ballroom

NIH Perspective: Coordinating interdisciplinary research on CVI

Shefa Gordon, PhD, Kristina Hardy, PhD, Erika Nelson

Tuesday, June 25, 2024

Grand Master Ballroom

Chasing CVI – A Curious Clinician’s Journey

Richard H. Legge, MD

Upon completion of this course, participants will:

2024 Perkins CVI Conference Awards

Lifetime Achievement Award

  • Kim Charlson
  • Richard Legge, M.D.
  • Ellen Mazel, M.Ed.
  • Barry Kran, OD, FAAO

Champion Award

  • Patricia Musolino, M.D., Ph.D.
  • Nicola McDowell, Ph.D.

Exhibitors

A logo for AI-Learners. The text is in different colors, including red, yellow, green, blue and purple.

AI-Learners

A black circle with "APH" in the middle.

American Printing House

Anchor center logo features an adult figure with a child figure leading the way with a cane

Anchor Center for Blind Children

Blue and teal letters that say, "CViConnectPro". Below, it says, "Visit cviconnect.co"

CVi Connect Pro

A blue lighthouse next to a gold sun. Below, it says "Miami Lighthouse for the Blind and Visually Impaired".

Miami Lighthouse for the Blind and Visually Impaired

Gold hands holding a blue globe to the left of "St. Francis de Sales School for the Deaf"

St. Francis de Sales School for the Deaf

A logo that has a brain icon above the text, "PCVIS; Pediatric Cortical Visual Impairment Society"

The Pediatric Cortical Visual Impairment Society

A purple circle with a white "T" with a black dot on top in the middle.

Safe Toddles

"Center for Assistive Technology Training"

Center for Assistive Technology Training

Thank you to our conference sponsors and supporters!

Interested in sponsoring? We have five sponsorship packages available. Apply today!

Sponsors

Logo that reads, "OPTASE Brought to you by Scope"

OPTASE by Scope Eyecare

Anchor center logo features an adult figure with a child figure leading the way with a cane

Anchor Center for Blind Children

A blue outlined oval with "AER" in the middle.

The Association for Education and Rehabilitation of the Blind and Visually Impaired (AER)

A logo that has a brain icon above the text, "PCVIS; Pediatric Cortical Visual Impairment Society"

The Pediatric Cortical Visual Impairment Society

Supporters

A red circle with a white goat in the middle. Below the circle, "Billy" is printed.

Billy Footwear

Blick Art Materials written in black

Blick Art Materials

A blue circle with "Brookline Booksmith" written in white in the center.

Brookline Booksmith

A doodle of mountains and a gold sun above "New England Disabled Sports"

New England Disabled Sports

A blue icon of a pier to the left of "Piers Park Sailing Center East Boston".

Piers Park Sailing Center

A cartoon of a pineapple in a purple circle. Around it is the text, "Playa Bowls", NJ's Original Acai Shop.

Playa Bowls

Rainbow letters that say, "Therapro".

Therapro

A flame above, "The Smoke Shop by Andy Husbands".

The Smoke Shop by Andy Husbands

A red circle with white letters in the middle that say, "Trader Joes".

Trader Joe’s

A blue icon of the mast of a boat next to the text, "USS Constitution Museum".

USS Constitution Museum

A black circle logo with the white text, "Time Out Market Boston".

Time Out Market Boston

A logo with the text "Wilson Farm, Growing since 1884" and a sketch of their farm-like building amongst greenery below the text.

Wilson Farm

A logo that includes "Samuel Adams" in navy blue letters.

Samuel Adams

A logo that displays a red boxy "A" above a red boxy "E" beside "Arts Emerson".

Arts Emerson

Two students work together as they engage with an adapted book

Exhibitor and sponsorship applications

Exhibitors

Apply to be an exhibitor at the 2024 conference! An early bird fee of $1,000 Is available until February 29, 2024. The regular fee is $1,250.

Sponsorships

We have five sponsorship packages available. Contact us for more information and to apply.

Continuing Education Reviewers Approvers from Boston Children’s Hospital Continuing Education Department: