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CVI research opportunities

Help move the field of CVI forward and better our understanding of how individuals are impacted by CVI by participating in CVI research.

Two adults, Dr. Lotfi Merabet and Dr. Melinda Chang from the NIH, sit next to each other and intently listen at the 2024 CVI Conference.

Why participate in CVI research? 

Participating in CVI research is crucial for advancing our understanding of Cerebral/Cortical Visual Impairment, which is often overlooked and difficult to diagnose. Research focuses on how CVI affects visual processing as it relates to behavior, development, and interactions with the world. The goal is to better understand how individuals are impacted by CVI which can lead to improved diagnosis, specialized interventions, and access to education. By contributing to research, participants help drive progress that benefits the wider CVI community and enhances quality of life.

Boston, MA

Bauer Lab of Neuroimaging and Vision Science:

The effects of brain injury on brain development & visual perception: An in-person study recruiting participants aged 10-65 with a history of early brain injury, stroke, trauma, genetic disorder, or preterm birth, and visual acuity better than 20/100, to explore the link between early brain injury and visual perceptual abilities.

Laboratory for Visual Neuroplasticity

Accessing Visual Processing Abilities in Cerebral Visual Impairment: An in-person study that investigates how individuals with CVI process visual information in complex environments using virtual reality and eye tracking. It focuses on understanding how sensory processing challenges impact their ability to perform tasks under different conditions. Participants must be 7+with a visual acuity of 20/60 or better. 

Northeastern University

CVI and Technology: A remote study for adults with CVI who use technology in their daily work, as well as parents, teachers, or family members of children with CVI who have experience using technology to support them, in order to understand their technology use and develop accessible solutions to enhance their experience.

Chapel Hill, NC

University of North Carolina at Chapel Hill

CVI in Angelman Syndrome: An online prevalence study examines Cortical Visual Impairment (CVI) in individuals with Angelman syndrome, focusing on its impact on communication in children and adolescents aged 2-18 years.

Los Angeles, CA

Visual Neurophysiology Laboratory – Children’s Hospital Los Angeles

Cortical/Cerebral Visual Impairment: An in-person CVI study focused on eye tracking, VEP, functional vision assessment (CVI Range-CR), and diffusion MRI

Ophthalmological disorders and eye tracking in children with ASD: An in-person study that aims to investigate visual problems in children with Autism Spectrum Disorder (ASD), as many may have undiagnosed eye problems due to difficulty communicating vision issues and lack of routine eye exams. 

Vision in SyndrOmic Neurodevelopmental disorders (Vision)- Angelman Syndrome and 15-Q: An in-person study comparing visual function in children with Dup15q syndrome and Angelman Syndrome to typically developing children, those with ASD, and intellectual disability, using eye tracking and clinical measures. It also explores correlations between visual function, development, and sensory processing in children with 15q duplication and deletion.

San Francisco, CA

Smith-Kettlewell Eye Research Institute

Cerebral Visual Impairment (CVI): An in-depth study on visual functioning in everyday life: Large international online study recruiting parents of children, older children and adults with Cerebral Visual Impairment to participate in a semi-structured interview about the lived experience of the CVIer, observation by parents and strategies used including sensory integration.

The semi-structured interview is held remotely via Zoom at a mutually convenient time considering time zones. The interview takes 1-2 hours and aims to gather insight from parental observations, lived experience of CVIers regarding their functional vision. Our objective is to document and characterize the functional vision challenges effecting visually guided behaviors of CVIers.
Find research by Dr. Chandna and team at our CVI Research Library. The SEELab also runs a CVI Parents and CVIers discussion group once every 6 weeks on a Monday. If you wish to participate in research or join the CVIers Group as s CVIer, contact the SEELab at [email protected].

Kamloops, BC, Canada

Thompson Rivers University

CVI Research Study: An in-person study comparing the movements and brain activity patterns of neurotypical control participants aged 7-18 years with those of age-matched neurodiverse participants who have Cerebral Visual Impairment (CVI).

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