Stories and resources

CVI stories

The CVI community has a lot to say. The collective voice of individuals with CVI and CVI families continues to grow. Our stories are powerful. Our stories create awareness. Our stories change how the world sees CVI.

Video

Centering CVI Voices

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Showing 56 Results for CVI stories

A young boy with curly hair sits at a homeschool desk, under a sign that says Mommy School
Article

How two parents approached CVI and homeschool
Molly, a young woman wearing her hair in a ponytail, stands between her parents. - all three smiling.
Story

How to navigate university with CVI
Q&A

What it’s like to grow up with CVI and dyslexia
Mason, a young teen with blue glasses, stands in front of a multi colored striped wall.
Article

Understanding dyslexia in kids with CVI
Title of video and article: Disability parenting unfiltered
Q&A

Disability parenting unfiltered: A conversation with Amanda Griffith-Atkins
Lyla kisses the chubby cheek of her son, Logan.
Story

Logan’s journey with infantile spasms and CVI
A young adult with brown hair, Molly, sits in front of a bright green wall. With a concentrated look on her face, she plays drums.
Story

How Molly found her rhythm and confidence with CVI and self-advocacy
A mother, Mia, takes a selfie with her teenaged daughter, Evelyn, who is dressed in punk rock clothes, sticking her tongue out, and making the horns symbol with her hands.
Story

How writer Mia Carella teaches inclusion and raises a CVI advocate
Mia wears a white shirt and glasses smiles while sitting in a classroom
Video

Mia’s CVI perspective: Cultivating an accessible school day
Nicola, Tina, Dagbjort, and Nai sit at a panelist table at the 2024 CVI Conference, with Rachel G. Bennett moderating.
Article

4 topics expertly addressed by adults with CVI at the 2024 Perkins CVI Conference
2 children play in water around a fire hydrant feature in a school splash pad.
Article

How does heat affect CVI?
Mirror picture of Molly Field wearing a leather jacket, a pattern shirt, and blue jeans.
Article

A day in the life with CVI: Molly Field