Resources and Guidance

Parent advocacy and support

Raising a child with CVI is a unique parenting challenge. There is a lot to figure out and always something next. You need strategies, ideas and advice for finding ways to make activities and the environment accessible, as well as collaborating with your child’s team. And because every child with CVI is unique, you’ll find various approaches to CVI in each resource.

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Event

1:1 CVI Parent Support

Showing 67 Results for Parenting

Boy wearing glasses looks toward their teacher while engaging with learning materials
Guide

When to suspect CVI

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Event

CVI Parent/Caregiver Community Chats

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How to DIY for CVI accessibility: Room-by-room projects

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How to DIY for CVI accessibility: The bathroom

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How to DIY for CVI accessibility: The bedroom

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How to DIY for CVI accessibility: The study nook

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How to DIY for CVI accessibility: The playroom

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How to DIY for CVI accessibility: The living room

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How to DIY for CVI accessibility: The kitchen

Henry’s love and passion for riding our public transportation trains and buses is going on three years strong now. So we’ve been able to get gifts connected to this love. A few favorites: MBTA train toy models and MBTA t-shirts and sweatshirts. For his recent birthday, a fellow CVI friend got him this train toy with music, lights, and movement, and he loves it. We also got some gifts outside this interest. The DRIVEN toy vehicle line has been great to go back to again and again. Fidgets and sensory toys are always a win because he can get into them immediately: keyboard fidgets and a cheap light-up spinner at Walgreens. We got him the Pop It! Pro last year, and while the light-up game goes a bit too fast for him, he really likes engaging with it. Honestly, the best gift is a train ride to get his favorite dairy-free ice cream.
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Unwrap joy with 100+ gift ideas for kids with CVI

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Q&A

In Louisiana, CVI activism ignites policy change

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Article

How to find a doctor who is able to evaluate for and diagnose CVI