Two students work together as they engage with an adapted book

Our mission

Cerebral/Cortical Visual Impairment (CVI) is the leading cause of blindness and low vision—yet it remains largely undiagnosed, misdiagnosed, and misunderstood. CVI Now and the CVI Center at Perkins is urgently confronting CVI through education, innovation, and collaboration. 

We equip the community with resources, tools, and support so that people with CVI are empowered to meaningfully access their world and define their success. Our approach is whole-person-focused and informed by research, data, and the lived experiences of individuals with CVI and their families/caregivers.

  • We value relationship-building and collaboration across stakeholder groups to help grow and advance the CVI field and broaden our community.
  • We are a convener and believe in the power of collaboration, diverse thinking, and connection.
  • Together, we can better confront CVI and improve outcomes for all individuals with CVI. 

Our collaborators

Our growing community of collaborators supports our CVI mission in one or more of the following ways: sharing CVI Now resources with their communities, collaborating with us on social media, partnering with us to provide training and education, and/or being thought partners. 

Anchor Center for Blind Children

Angelman Syndrome Foundation

ATRX Research Alliance

CACNA1A Foundation

CPARF logo

Cerebral Palsy Alliance Research Foundation

Cerebral Palsy Foundation

CCVI logo

CCVI – Missouri

DEE-P Connections logo

Decoding Developmental
Epilepsies

DYNC1H1 logo

DYNC1H1 Association

Epilepsy Alliance America

Epilepsy Alliance Louisiana

Epilepsy Foundation logo

Epilepsy Foundation

FOXG1 Research Foundation

Hydrocephalus logo

Hydrocephalus Foundation

International Foundation for CDKL5 Research (IFCR)

KAT6 Foundation

The Laboratory for Visual Neuroplasticity at Massachusetts Eye & Ear and Harvard Medical School

Louie’s Huwe
HUWE1 Community

Malan syndrome foundation logo

Malan Syndrome Foundation

MCB/DDS Partnership

Massachusetts Commission for the Blind and Department of Disability Services (MCB/DDS)

Massachusetts Down Syndrome Congress

Operation House Call

PKS Kids, Pallister-Killian

PCVIS logo

Pediatric CVI Society

Pediatric Stroke and Brain Injury Education, MGH and Spaulding

Prisms logo

Parents and Researchers Interested in Smith-Magenis Syndrome

Project 8p

Logo for Raging Raymond Foundation

Raging Raymond Foundation

SCN8A alliance logo

SCN8A Alliance

SMS Foundation UK logo

SMS Foundation UK

STXBP1 Foundation

The Arc Massachusetts

We Rock the Spectrum Kid’s Gym, Westford, MA

Truffles the Kitty Organization