Two students work together as they engage with an adapted book

Our mission

Cerebral/Cortical Visual Impairment (CVI) is the leading cause of blindness and low vision—yet it remains largely undiagnosed, misdiagnosed, and misunderstood. CVI Now and the CVI Center at Perkins is urgently confronting CVI through education, innovation, and collaboration. 

We equip the community with resources, tools, and support so that people with CVI are empowered to meaningfully access their world and define their success. Our approach is whole-person-focused and informed by research, data, and the lived experiences of individuals with CVI and their families/caregivers.

  • We value relationship-building and collaboration across stakeholder groups to help grow and advance the CVI field and broaden our community.
  • We are a convener and believe in the power of collaboration, diverse thinking, and connection.
  • Together, we can better confront CVI and improve outcomes for all individuals with CVI. 

Our collaborators

Our growing community of collaborators supports our CVI mission in one or more of the following ways: sharing CVI Now resources with their communities, collaborating with us on social media, partnering with us to provide training and education, and/or being thought partners. 

Anchor Center for Blind Children

ATRX Research Alliance

CACNA1A Foundation

CPARF logo

Cerebral Palsy Alliance Research Foundation

Cerebral Palsy Foundation

Epilepsy Alliance America

Epilepsy Alliance Louisiana

FOXG1 Research Foundation

KAT6 Foundation

The Laboratory for Visual Neuroplasticity at Massachusetts Eye & Ear and Harvard Medical School

Louie’s Huwe
HUWE1 Community

Massachusetts Down Syndrome Congress

Operation House Call

Pediatric Stroke and Brain Injury Education, MGH and Spaulding

STXBP1 Foundation

The Arc Massachusetts

We Rock the Spectrum Kid’s Gym, Westford, MA

Truffles the Kitty Organization