Stories and resources

CVI stories

The CVI community has a lot to say. The collective voice of individuals with CVI and CVI families continues to grow. Our stories are powerful. Our stories create awareness. Our stories change how the world sees CVI.

Video

Centering CVI Voices

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Showing 50 Results for Family stories

A young adult with brown hair, Molly, sits in front of a bright green wall. With a concentrated look on her face, she plays drums.
Story

How Molly found her rhythm and confidence with CVI and self-advocacy
A mother, Mia, takes a selfie with her teenaged daughter, Evelyn, who is dressed in punk rock clothes, sticking her tongue out, and making the horns symbol with her hands.
Story

How writer Mia Carella teaches inclusion and raises a CVI advocate
Mia wears a white shirt and glasses smiles while sitting in a classroom
Video

Mia’s CVI perspective: Cultivating an accessible school day
Nicola, Tina, Dagbjort, and Nai sit at a panelist table at the 2024 CVI Conference, with Rachel G. Bennett moderating.
Article

4 topics expertly addressed by adults with CVI at the 2024 Perkins CVI Conference
2 children play in water around a fire hydrant feature in a school splash pad.
Article

How does heat affect CVI?
Mirror picture of Molly Field wearing a leather jacket, a pattern shirt, and blue jeans.
Article

A day in the life with CVI: Molly Field
Omer wears a yellow shirt and sits at a restaurant table.
Story

A day in the life with CVI: Omer
Toddler Luka sits in the middle of a visually busy rug.
Story

How Luka’s CVI diagnosis provided understanding, community, and healing
Logan and his three siblings pose for a professional photo.
Article

Stories and advice from siblings of kids with CVI
Bower wears a life jacket and sits
Story

Bower’s dual-diagnosis journey of cerebral palsy and CVI
Jack kneels to pose with his guide dog, a yellow lab named Laredo.
Video

My experience transitioning to college as a student with CVI
Shea hold his son Koen showing him a large red adaptive communication switch.
Article

Celebrating CVI dads: Shea and Koen