Video

Centering CVI Voices

CVI is a brain-based visual impairment and the leading cause of blindness in children. With CVI, every person’s lived experience is different. Let’s learn more from kids, teenagers, and adults with CVI.

Showing 30 Results for Family stories

portrait photo of LJ Seiff
Video

My experience as a student living with CVI who uses AAC
Tom and a friendly dog touch noses while they sit on a boat at sunset.
Q&A

Celebrating CVI dads: Steve and Tom
Carson sits on a part bench with his arm around his infant son, Henry, who has CVI.
Story

Celebrating CVI dads: Stories of fatherhood and raising children with CVI
Black and white headshot of visual artist Kendall Cowle
Story

How visual artist Kendall Cowle uses photography to reframe the CVI experience
August wearing glassing sitting and smiling in front of a window.
Story

How my son’s CVI diagnosis broke, then rebuilt my heart
Headshots of the hosts and panelists. From top left to right: Nicola, Nai, Rafeal. From bottom left to right: Dijana, Amanda, Christina
Video

Adults with CVI share how “CVI leaves no stone unturned”
Video

Tina’s CVI Perspective: “Your eyes see, but your brain doesn’t”
A close up of Albie smiling wearing a green shirt that reads: Team
Q&A

Albie’s CVI Perspective: “I want people to be more open to CVI”
Boy sticking his tongue with glee as he touches a Lego statue of Today from Star Wars
Article

Speaking of the brain
Video

Centering CVI Voices
Barbara and her son, Logan, hug and smile
Story

Navigating my son’s CVI and complex communication needs
Window reflection of a woman using a camera
Story

Tina’s art: “How I see the world”