Stories and resources

CVI stories

The CVI community has a lot to say. The collective voice of individuals with CVI and CVI families continues to grow. Our stories are powerful. Our stories create awareness. Our stories change how the world sees CVI.

Video

Centering CVI Voices

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Showing 46 Results for Family stories

2 children play in water around a fire hydrant feature in a school splash pad.
Article

How does heat affect CVI?
Mirror picture of Molly Field wearing a leather jacket, a pattern shirt, and blue jeans.
Article

A day in the life with CVI: Molly Field
Omer wears a yellow shirt and sits at a restaurant table.
Story

A day in the life with CVI: Omer
Toddler Luka sits in the middle of a visually busy rug.
Story

How Luka’s CVI diagnosis provided understanding, community, and healing
Logan and his three siblings pose for a professional photo.
Article

Stories and advice from siblings of kids with CVI
Bower wears a life jacket and sits
Story

Bower’s dual-diagnosis journey of cerebral palsy and CVI
Jack kneels to pose with his guide dog, a yellow lab named Laredo.
Video

My experience transitioning to college as a student with CVI
Shea hold his son Koen showing him a large red adaptive communication switch.
Article

Celebrating CVI dads: Shea and Koen
Stephanie kneels and smiles next to a smiling Rosalie in front of a bright blue slide at a playground.
Article

What does intentional advocacy look like? CVI mom Stephanie Kung shows us
Dagbjört, a white woman with blonde hair and a green rain jacket, sits on the mossy ground.
Q&A

My experience with CVI and migraines
Story

How Bruce creates joy while living with CVI and Angelman syndrome
A young Nolan wears glasses and smiles.
Article

“Have you ever heard of CVI?” A parent story of persistence and support