https://www.perkins.org/centering-cvi-voices/
Video

Centering CVI Voices

CVI is a brain-based visual impairment and the leading cause of blindness in children. With CVI, every person’s lived experience is different. Let’s learn more from kids, teenagers, and adults with CVI.

Showing 24 Results for Family stories

A close up of Albie smiling wearing a green shirt that reads: Team
Q&A

Albie’s CVI Perspective: “I want people to be more open to CVI”
A plank of dark gray wood cracked in half
Video

How I see the world
Boy sticking his tongue with glee as he touches a Lego statue of Today from Star Wars
Article

Speaking of the brain
https://www.perkins.org/centering-cvi-voices/
Video

Centering CVI Voices
Barbara and her son, Logan, hug and smile
Story

Navigating my son’s CVI and complex communication needs
Window reflection of a woman using a camera
Story

Tina’s art: “How I see the world”
Aiden sits on the carpet with his AAC device next to his sister while playing uno.
Q&A

Making strides: Aiden’s communication journey
Dagbjört smiles at the camera while holding a pink rose
Q&A

Why music is my vision: Dagbjört talks about living with CVI as an adult
Girl with CVI sitting at picnic table outside in the woods, smiling up at the sky. The sun is lighting up her face.
Article

Kids with CVI doing what they love
Faith sitting on her red adapted bike with her dog sitting in the back in a basket
Story

Faith is unstoppable: Bike-riding with CVI and complex needs
A little boy with his first place ribbon in hand.
Story

Seeing what was unseen for my son
A young boy wearing glasses and smiling in front of the ocean.
Story

My son’s initial CVI diagnosis