Stories and resources

CVI stories

The CVI community has a lot to say. The collective voice of individuals with CVI and CVI families continues to grow. Our stories are powerful. Our stories create awareness. Our stories change how the world sees CVI.


Centering CVI Voices

Showing 35 Results for Family stories

A young Nolan wears glasses and smiles.

“Have you ever heard of CVI?” A parent story of persistence and support

Brittany and Joseph Hewitt’s with their daughter, Harper, smiling in front of a Christmas tree

CVI advocacy win: How Brittany Hewitt fought for school accessibility in Indiana

Zeke and Tina take a selfie

7 images that show what people with CVI may see

Isaac and his son Emmett pose for photo outdoors

Celebrating CVI dads: Isaac and Emmett

A photo of Zach laying on Chris's chest on a couch. They are both smiling.

Celebrating CVI dads: Chris and Zach

portrait photo of LJ Seiff

My experience as a student living with CVI who uses AAC

Tom and a friendly dog touch noses while they sit on a boat at sunset.

Celebrating CVI dads: Steve and Tom

Carson sits on a part bench with his arm around his infant son, Henry, who has CVI.

Celebrating CVI dads: Stories of fatherhood and raising children with CVI

Black and white headshot of visual artist Kendall Cowle

How visual artist Kendall Cowle uses photography to reframe the CVI experience

August wearing glassing sitting and smiling in front of a window.

How my son’s CVI diagnosis broke, then rebuilt my heart

Headshots of the hosts and panelists. From top left to right: Nicola, Nai, Rafeal. From bottom left to right: Dijana, Amanda, Christina

Adults with CVI share how “CVI leaves no stone unturned”


Tina’s CVI Perspective: “Your eyes see, but your brain doesn’t”