Family Stories

Burju Sari: My Son's CVI Diagnosis

Burju shares her family's journey towards understanding CVI, getting the right support and interventions after she started working with a TVI from Perkins, and the hope they now have for their son as his vision continues to improve.

Even when you think you aren’t being heard, parent voices are the loudest and most effective for making lasting change.
- Dr. Linda McDowell, Co-Director of the National Center for Deaf-Blindness