Family Stories
Family Stories
Family Stories
An essential list of personal stories and resources from the CVI community
Faith has CVI and complex needs, but this didn’t keep her from actively engaging in her world and learning to ride a bike.
One parent's story about the importance of educating professionals about CVI and how she became her child's own CVI expert.
Listen to Burju Sari discuss her experience with a neurologist, when she received an initial CVI diagnosis for her child.
The story of Anne Sullivan and Helen Keller showed that education matters and is possible for everyone, including for children with CVI.
Listen to Burju Sari describe her life-changing meeting with Ellen Mazel, Perkins' CVI Program Director.
Burju Sari: My Son's CVI Diagnosis
Burju shares her family's journey towards understanding CVI, getting the right support and interventions after she started working with a TVI from Perkins, and the hope they now have for their son as his vision continues to improve.
Even when you think you aren’t being heard, parent voices are the loudest and most effective for making lasting change.
- Dr. Linda McDowell, Co-Director of the National Center for Deaf-Blindness