Family Stories
Family Stories
Family Stories
Interview with Angela, Aiden’s mom, who talks about CVI and Childhood Apraxia of Speech (CAS) and the road to Aiden's progress.
Krish, an 8-year-old with CVI, shared a presentation with his class about how his world works.
Dagbjört talks about visual fatigue, the challenge of new environments and clutter, and how music has changed her life.
A photo story celebrating the incredible abilities of children with CVI
An essential list of personal stories and resources from the CVI community
Faith has CVI and complex needs, but this didn’t keep her from actively engaging in her world and learning to ride a bike.
One parent's story about the importance of educating professionals about CVI and how she became her child's own CVI expert.
Listen to Burju Sari discuss her experience with a neurologist, when she received an initial CVI diagnosis for her child.
The story of Anne Sullivan and Helen Keller showed that education matters and is possible for everyone, including for children with CVI.
Listen to Burju Sari describe her life-changing meeting with Ellen Mazel, Perkins' CVI Program Director.
My daughter was born with a hematoma on the left side of her brain, resulting in CVI. This is how we got help and embraced the journey.
When Rachel Bennett's son had a CVI meltdown in the middle of CVS, she received help from an unlikely source.
Henry's CVI was missed by doctors and educators until he was 5 years old.
Burju Sari: My Son's CVI Diagnosis
Burju shares her family's journey towards understanding CVI, getting the right support and interventions after she started working with a TVI from Perkins, and the hope they now have for their son as his vision continues to improve.
CVI is real. Don't ever let anyone tell you otherwise.
- Rachel, Henry's mom