The CVI community has a lot to say. The collective voice of individuals with CVI and CVI families continues to grow. Our stories are powerful. Our stories create awareness. Our stories change how the world sees CVI.
How Bruce creates joy while living with CVI and Angelman syndrome
“Have you ever heard of CVI?” A parent story of persistence and support
CVI advocacy win: How Brittany Hewitt fought for school accessibility in Indiana
7 images that show what people with CVI may see
Celebrating CVI dads: Isaac and Emmett
Celebrating CVI dads: Chris and Zach
My experience as a student living with CVI who uses AAC
Celebrating CVI dads: Steve and Tom
Celebrating CVI dads: Stories of fatherhood and raising children with CVI
How visual artist Kendall Cowle uses photography to reframe the CVI experience
How my son’s CVI diagnosis broke, then rebuilt my heart
Adults with CVI share how “CVI leaves no stone unturned”