Everyday we hear from parents who are craving reliable information and advice on Cortical Visual Impairment / Cerebral Visual Impairment (CVI) — the leading cause of visual impairment in children in the United States. We know you are your child's greatest advocate — at home, at school, in the doctor's office, in the community, in life. You know your child best, and you need support from people you trust. You deserve answers and solutions to help you make decisions that not only impact your child's life, but your life and your entire family.
That's why Perkins created CVI Now: to empower parents with all of the CVI knowledge and tools you and your child need to succeed.
One of the most critical pieces in helping your child is first understanding how CVI impacts their life and development. You'll learn everything you need to know in Understanding CVI, developed by CVI specialists at Perkins School for the Blind. Discover how professionals diagnose a child with CVI and what you can do afterward. Explore a diagram of the brain's visual pathways and processing centers to understand better why your child's eye exam was normal, but she still doesn't seem to see. Whether you’re searching for a CVI diagnosis or consider yourself knowledgeable, you’ll continue to learn more throughout your CVI journey with our inclusive approaches to CVI. Our CVI team will continue to grow alongside you as more and more research surrounding CVI becomes available.
Raising a child with CVI is a unique parenting challenge. You need strategies, ideas and advice for working with your child at home as well as collaborating with your child's team. And because every child with CVI is unique, you’ll find various approaches to CVI in each piece. Find these CVI resources in our Parenting section and even ask the experts a question in our private, just-for-parents CVI Now Facebook Group.
With CVI Now, we want to reassure parents that you’re not alone. We’re collecting stories from CVI families all around the US about their own experiences — and we know you’ll be able to relate. We invite you to share your CVI story with us, too!
CVI Now Facebook Group
Reassurance, support and connection — these are critical needs for families, and that's why we've created our CVI Now Facebook Group. It's a safe, positive space for parents to meet other parents and discuss all of the things about raising a child with CVI that no one else can truly understand. Resources and information provided are vetted by our CVI team to ensure access to high-quality promising practices and research.
We all have so much to learn about CVI, so let's learn and support each other on this journey.