What is CVI?

CVI is a brain-based visual impairment and the leading cause of visual impairment in children.

Learn about CVI

How is CVI diagnosed?

An accurate CVI diagnosis is critical for access and advocacy.

Learn about diagnosis

After the diagnosis

Five steps that involve finding support, getting assessments and beginning intervention.

Learn about next steps

Kids with CVI can’t wait!

Cortical/Cerebral Visual Impairment is the new leading cause of blindness for children in the United States. This is why we created CVI Now — for every child, for every parent, for every caregiver, for every provider. Join us.

Stories & resources

Illustration of student with their back facing us. Four pictures surround the student: a student talking with a teacher, students working together in a group, a busy clutter classroom, and a teacher pointing to a student raising their hand. At the center is a chaotic mess of lines to show how social learning expectations can be inaccessible for students with CVI.
How-to
How to rethink four social and environmental norms to fully include individuals with CVI
Image of Nai standing on the peak of a mountain while hiking, white cane in hand, soaking up the sun on a windy day. Text at bottom left corner of image reads: "Nai's CVI Perspective Part 1."
Q&A
Nai’s CVI Perspective: “You’re seeing but you’re not”
Image of Nai standing on the peak of a mountain while hiking, white cane in hand, soaking up the sun on a windy day. Text at bottom left corner of image reads: "Nai's CVI Perspective Part 2."
Q&A
Nai’s CVI Perspective: “I had to pass as sighted…nobody understood I was visually impaired.”

Parents, join our private CVI Facebook group!

Join the CVI Now parent community to connect with and learn from other CVI families — to ask your questions and get answers.

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Mom and son outisde embracing while looking at and smiling for the camera

Stories from CVI families and individuals

View all CVI stories
A visually impaired girl standing on a small, stationary trampoline.
Story
Before every ‘Miracle Worker,’ there’s a family who believes their child can learn
Krish, a boy with CVI, sitting on park bench with his twin brother. Both are smiling big.
Video
How my world works: Self-advocacy and CVI
Image of Nai standing on the peak of a mountain while hiking, white cane in hand, soaking up the sun on a windy day. Text at bottom left corner of image reads: "Nai's CVI Perspective Part 1."
Q&A
Nai’s CVI Perspective: “You’re seeing but you’re not”

CVI Now videos

White text card on blue background. Text reads Navigating the IEP Process. CVI Now logo.
Webinar
Navigating the IEP process
Blue writing on a white square over blue background with orange boarders. Text reads Recording of live virtual event. Matt Tiejen presents CVI and the math mind. CVI Now logo.
Webinar
Matt Tietjen presents CVI and the math mind
Henry inside a wooden truck at the playground leans and smiles toward the camera

Henry’s diagnosis journey

Rachel Bennett Henry’s mom

“Henry’s diagnosis story is common. Children with CVI are under-diagnosed, misdiagnosed and many have difficulty getting access to appropriate educational services. This must change!”

Read full story
Go to all stories

Expert resources

Learn about CVI and the brain.

Dive into resources to learn all about the leading cause of visual impairment in kids. And deepen your knowledge about our visual system and the CVI brain.

Learn about CVI
Boy playing with a sparkler at night

Join us on our CVI learning journey.

Let’s learn and support each other on this journey. Have questions? Reach out to the CVI Team today!

Contact us