CVI Now

CVI is the leading cause of childhood blindness and low vision

Cerebral/Cortical Visual Impairment (CVI) is a brain-based visual impairment caused by damage to the visual pathways or visual processing areas of the brain.

CVI is alarmingly underdiagnosed and misunderstood. Less than 20% of children with CVI have been diagnosed, according to new research conducted by Perkins School for the Blind with analysis from McKinsey & Company.

Every individual with CVI, no matter their zip code or how their CVI manifests, has a right to early diagnosis, comprehensive, effective vision services, and accessible educational programs.

CVI Now is here to empower families and professionals with deep and evolving CVI knowledge, resources, and tools rooted in current research and the lived experiences of people with CVI.

Find first-of-its-kind prevalence data on CVI

What We’re Working On

The Perkins CVI Protocol℠

8 essential takeaways from the 2024 Perkins CVI Conference

Lea sobre discapacidad visual cerebral/cortical en español

Omer sits in his wheelchair and smiles. He wears a grey New Balance shirt and fresh, red Billy footwear.

What is CVI?

CVI is a brain-based visual impairment and the leading cause of visual impairment in children.

Learn about CVI

How is CVI diagnosed?

An accurate CVI diagnosis is critical for access and advocacy.

Learn about diagnosis

After the diagnosis

Five steps that involve finding support, getting assessments and beginning intervention.

Learn about next steps

Boy touches an image of his water bottle on the iPad

Featured Resource

The CVI Now IEP Guide

We know that IEPs can be overwhelming and stressful. We’ll walk you through the IEP process from beginning to end with CVI-specific explanations and advice.

This guide is a productive, solutions-oriented resource.
Dive into how IEPs are built and implemented, as well as what questions to ask and what to expect at each stage.
We’re here for you!

CVI Now IEP Guide