Video

Centering CVI Voices

CVI is a brain-based visual impairment and the leading cause of blindness in children. With CVI, every person’s lived experience is different. Let’s learn more from kids, teenagers, and adults with CVI.

CVI is a brain-based visual impairment and the leading cause of blindness in children. With CVI, every person’s lived experience is different. Let’s learn more from kids, teenagers, and adults with CVI as they share what they love, what’s hard, what helps them, and what they want the world to know about CVI.

As we unite in our shared mission to change the world for people with CVI and their families, we must listen and learn from people with CVI and their families.

Centering CVI voices is essential in everything we do to move this field forward. We must come to this work from a disability rights lens. Central to collaboration is leaning in and learning from those living with CVI. We must empower kids, teenagers, and adults with CVI to continue to find their collective voice to inform research, assessment, education, services, and advocacy. 

Stories have an undeniable power to change how the world sees CVI. Find more stories and resources from our CVI community.

SHARE THIS ARTICLE
Zeke and Tina take a selfie
Article

7 images that show what people with CVI may see

Read more
Yalissa walks down a sidewalk with a female Perkins staff member.
Article

How do you center CVI in O&M assessments? Strategies for CVI and O&M: Part 3

Read more
A young adult dressed in black with a black cap stands outside with his O&M instructor. They both are smiling holding white canes.
Article

How does O&M address CVI visual behaviors? CVI and O&M: Part 2

Read more