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Centering CVI Voices

CVI is a brain-based visual impairment and the leading cause of blindness in children. With CVI, every person’s lived experience is different. Let’s learn more from kids, teenagers, and adults with CVI.

CVI is a brain-based visual impairment and the leading cause of blindness in children. With CVI, every person’s lived experience is different. Let’s learn more from kids, teenagers, and adults with CVI as they share what they love, what’s hard, what helps them, and what they want the world to know about CVI.

As we unite in our shared mission to change the world for people with CVI and their families, we must listen and learn from people with CVI and their families.

Centering CVI voices is essential in everything we do to move this field forward. We must come to this work from a disability rights lens. Central to collaboration is leaning in and learning from those living with CVI. We must empower kids, teenagers, and adults with CVI to continue to find their collective voice to inform research, assessment, education, services, and advocacy. 

Stories have an undeniable power to change how the world sees CVI. Find more stories and resources from our CVI community.

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