7 images that show what people with CVI may see

Envision how face blindness, visual fatigue, the impact of clutter, and other visual behaviors associated with CVI may manifest in these seven newly rendered images.

Zeke and Tina take a selfie

Ever wonder what someone with Cerebral/Cortical Visual Impairment may see? Explore the seven captivating images below, each inspired by the unique perspectives and personal reports of remarkable individuals who have this brain-based visual impairment.

While no two people with CVI have the same lived experience, people with CVI often display common visual behaviors and traits. Each image reflects both the diversity of the visual experience with CVI, and the shared understanding that having CVI is a big deal—influencing every facet of these individuals’ lives and shaping the way they perceive, interact, and navigate the world around them. Additionally, amidst these varied perspectives, visual fatigue emerges as a shared thread, highlighting one of the most common challenges faced by those living with CVI. These visual behaviors may change and improve over time, but they never disappear.

Check out these 7 examples of rendered images based on reports from children and adults living with CVI, the leading cause of childhood blindness and low vision.

A blurred scattering of objects together. All of the objects bleed together and it’s difficult to determine where they end and begin. Text: CVI from Nai’s Perspective.

Nai’s perspective:

Information is landing on their eyes, but they are unable to make sense of it. Light or certain colors may enter their awareness, but determining where one object ends and the next begins is difficult.

An extremely blurry picture of people overlooking a bridge at a park. Thermometer icon indicating it's hot outside. Text: CVI from one CVIer's perspective.

One CVIer’s perspective:

When it is hot out, he receives reduced visual feedback from his brain.

A woman in a red shirt stands in the center of a crowd of people. The image is incredibly blurry and shaky. Text: CVI from one CVIer’s perspective.

One CVIer’s perspective:

He uses color as a way to help him recognize and remember particular objects or people.

A blurry, shaky-looking scene resembling several trees. Text: CVI from Tina’s perspective.

Tina’s perspective:

CVI combined with her 20/100 vision is blurry and shaky (#Nystagmus), and her visual field is reduced and dimmed (from optic nerve atrophy).

Image by Tina Zhu Xi Caruso

A mostly dark image with a small hole in the middle where a few stairs and a plant hanging on a wall are visible. Text: CVI from Dagbjört’s perspective

Dagbjört’s perspective:

When she’s fatigued, her vision is comparable to looking through a straw.

Three young adults with blurry, indistinguishable faces posing with arms around one another. Text: CVI from Omer’s perspective

Omer’s perspective:

Recognizing and understanding faces and facial expressions is difficult for him to understand.

Three children walk down the street with backpacks, but the bottom half of the image is cut off and black. It is difficult to determine on what surface the people are walking along. Text: CVI from Krish's perspective.
Three children walk down the street with backpacks. Text: Typical vision.

Krish’s perspective: Lower visual field loss means he cannot see below eye level.

Read more CVI stories from people with CVI and their families.

Stephanie kneels and smiles next to a smiling Rosalie in front of a bright blue slide at a playground.

What does intentional advocacy look like? CVI mom Stephanie Kung shows us

Read more
Aidan, a teenager with CVI, sitting as a table smiling while answering a question about his CVI.

Aidan shares what it’s like to live with CVI

A close up of Albie smiling wearing a green shirt that reads: Team

Albie’s CVI Perspective: “I want people to be more open to CVI”

Read more