Stories and resources

CVI stories

The CVI community has a lot to say. The collective voice of individuals with CVI and CVI families continues to grow. Our stories are powerful. Our stories create awareness. Our stories change how the world sees CVI.

Video

Centering CVI Voices

Read Now

Showing 38 Results for Family stories

Shea hold his son Koen showing him a large red adaptive communication switch.
Article

Celebrating CVI dads: Shea and Koen
Stephanie kneels and smiles next to a smiling Rosalie in front of a bright blue slide at a playground.
Article

What does intentional advocacy look like? CVI mom Stephanie Kung shows us
Story

How Bruce creates joy while living with CVI and Angelman syndrome
A young Nolan wears glasses and smiles.
Article

“Have you ever heard of CVI?” A parent story of persistence and support
Brittany and Joseph Hewitt’s with their daughter, Harper, smiling in front of a Christmas tree
Article

CVI advocacy win: How Brittany Hewitt fought for school accessibility in Indiana
Zeke and Tina take a selfie
Article

7 images that show what people with CVI may see
Isaac and his son Emmett pose for photo outdoors
Article

Celebrating CVI dads: Isaac and Emmett
A photo of Zach laying on Chris's chest on a couch. They are both smiling.
Article

Celebrating CVI dads: Chris and Zach
portrait photo of LJ Seiff
Video

My experience as a student living with CVI who uses AAC
Tom and a friendly dog touch noses while they sit on a boat at sunset.
Q&A

Celebrating CVI dads: Steve and Tom
Carson sits on a part bench with his arm around his infant son, Henry, who has CVI.
Story

Celebrating CVI dads: Stories of fatherhood and raising children with CVI
Black and white headshot of visual artist Kendall Cowle
Story

How visual artist Kendall Cowle uses photography to reframe the CVI experience